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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Ok, I don´t want to fight with you either. I was just pointing out that I think that Prof. Davis probably would like to see some evidence, so if you have it, it would help your case to provide him (or PR) with it.
You didn´t hurt my feelings anyway, but I don´t think it is civil to insinuate instead of being open with facts, or just sending the message you had to Ron Davis. In my opinion you harm KDM´s reputation by writing what you did, and even using his full name on an open forum.
Yes, I agree that it would be good to get facts, not insinuations, if it should be of any use for an informed decision.
Luckily, I had facts at hand before I choose to see KDM.
Don't worry @Vassie. Ron Davis, Montoya or whoever decides to work with KDM knows who he's. You don't need to warn them from the ''big danger'' they are facing by collaborating with him.
We also don't know how KDM works when he's doing scientific studies. You can claim things you have heard from patients, from him, from what u are seeing in his way to treat patients, what he told in some conference etc etc...but I don't think any of us is able to know how we works with other specialists for research purposes.
Thanks, but your the last person I would ever consult for anything. For your information, it`s not relevant if patients were harmed or not, as in Norway the principle is that experimental treatment has to be given in studies, unless the patients are actually dying. And for the last time, I am not suing KDM, I`m pointing out that he`s a crook. I dont give two cents about your layman understanding of the law
You are right that experimental treatment on a large number of patients is not allowed in some countries. Finnish CFS/ME expert Olli Polo, who was a well respected professor and sleep researcher, recently lost his private practice license due to the same issue. But prescribing a medication like for example LDN "off-label" in individual cases is perfectly allowable. I know it is in Norway as well, because apparently 70% of the general practitioners there now prescribe LDN after a TV documentary about how LDN has helped Norwegian MS patients came out. In some diseases there is no guideline for how to treat patients, but an off-label treatment may help to treat an aspect of the disease. Lyrica/Pregabalin is another common drug that is prescribed "off-label" for condition X to condition Y, and nobody seems to care about that.
Really sorry to see @msf, a member I really respect, behaving so poorly on this thread. It does not do you any credit. You have not only taken an aggressive tone, but have actually levelled direct insults to members (the one about Marky90 being too incapable to win his cases). Not good, I understand emotions are high, but that's the very situation where we need to be most careful.
Correcting the spelling on a non-native English speaker to score points on them is not nice.
There's a lull in moderation here, so the inappropriate threads can't be reported. So thought I should at least speak up for anyone who has been offended by the inappropriate tone here.
Yes, you are right, Marky90's tone was not great. I didn't see where he called you pathetic and a troll, and I'm sorry if I overlooked that and treated you unfairly.Well, you have failed to do that, since many people were offended by the tone of Marky90 as well (I guess you just missed him calling me pathetic and a troll). As I explained above, I wouldn´t normally correct someone´s English, but if they repeatedly use a slanderous term wrong, what else am I supposed to do? I guess I could just have ignored it, but people get away with unsubstantiated allegations on threads all the time, and to make those people immune from criticism does not help those with ME.
Well, you have failed to do that, since many people were offended by the tone of Marky90 as well (I guess you just missed him calling me pathetic and a troll). As I explained above, I wouldn´t normally correct someone´s English, but if they repeatedly use a slanderous term wrong, what else am I supposed to do? I guess I could just have ignored it, but people get away with unsubstantiated allegations on threads all the time, and to make those people immune from criticism does not help those with ME.
And if you said you think he is dishonest and he could be a crook, then I wouldn´t have done so.
The nice thing about jackasses is that it usually isn't necessary for anyone else to reveal that they are a jackass. They do an excellent job of that on their own, which is indeed in the nature of jackasses.I guess I could just have ignored it, but people get away with unsubstantiated allegations on threads all the time, and to make those people immune from criticism does not help those with ME.
Is there a need for patients to explain any discrepancy? I see KDM because he helps manage my symptoms and is willing to try sensible treatments.I am still interested in hearing the comments of KDM supporters on how they explain the discrepancy between almost every patient of KDM being diagnosed with one or more infections, and research consistently showing a low prevalence of infections in ME/CFS.
The nice thing about jackasses is that it usually isn't necessary for anyone else to reveal that they are a jackass. They do an excellent job of that on their own, which is indeed in the nature of jackasses.
And yelling at a jackass certainly isn't going to accomplish anything. I recommend patting it on the head and shoving a carrot in its mouth if it starts braying uncontrollably
I'm reserving judgement. But I think @msf holds a strong opinion on the matter, and seeing the situation from a different angle might make it harder for someone to get a rise out of him, whether that is their intention or not.Say it to my face.
I'm reserving judgement. But I think @msf holds a strong opinion on the matter, and seeing the situation from a different angle might make it harder for someone to get a rise out of him, whether that is their intention or not.