The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Open Letter to Gaskell (principle of QMUL) calling for the release of PACE data

Discussion in 'General ME/CFS News' started by user9876, Sep 6, 2016.

  1. user9876

    user9876 Senior Member

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    An open letter to the head of QMUL has been posted on the virology blog

    http://www.virology.ws/2016/09/06/open-letter-to-queen-mary-university-london-about-pace/


    Signed By

    Ron Davis,
    Jonathan Edwards
    Rebecca Goldin
    Bruce Levin
    Zaher Nahle,
    Bruce Levin,
    Zaher NahleVincent R. Racaniello,
    Charles Shepherd,
    John Swartzberg,

    So the management of QMUL have been told that senior academics are raising concerns over the PACE trial and the way the results are reported. If Gaskell and QMUL make more attempts to cover up the data it is because they are involved in hiding the results. Gaskell will become known as the person who backed a trial where recovery was defined below the level of the trial entry conditions.
     
    moosie, Justin30, mango and 24 others like this.
  2. msf

    msf Senior Member

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    Letter reads:

    Dear QMUL,

    Stop being fuckwits.

    Regards,

    Science
     
    Last edited: Sep 6, 2016
    moosie, Justin30, Mary and 23 others like this.
  3. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    Gets to the nub.
     
  4. Sasha

    Sasha Fine, thank you

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    Stellar job - big thanks to all those signatories.
     
    moosie, Justin30, mango and 7 others like this.
  5. Daisymay

    Daisymay Senior Member

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    Yes brilliant letter, thanks so very much to all those involved!
     
    moosie, actup, Comet and 4 others like this.
  6. alex3619

    alex3619 Senior Member

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    Making sure key players are informed ensures they cannot claim they didn't know.
     
    moosie, Justin30, Daisymay and 10 others like this.
  7. mfairma

    mfairma Senior Member

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    It's nice to see outsiders using words like ridiculed and marginalized to describe how patients are treated.
     
    moosie, Justin30, Mary and 9 others like this.
  8. Valentijn

    Valentijn The Diabolic Logic

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    Be sure to click through, and vote-up comments and comment yourself if you're up to it. The feedback really does help to let people know that this is an important topic.
     
    Justin30, Bob, mango and 6 others like this.
  9. Sasha

    Sasha Fine, thank you

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    I agree - and thank the signatories! What they're doing for us is amazing. Their letter could be the thing that gets the data released.
     
    Bob, Valentijn and sarah darwins like this.
  10. trishrhymes

    trishrhymes Senior Member

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    Would it be possible for copies of this brilliant letter to be sent to the staff and students of QMUL? They should be made aware of what their university is doing to waste precious funds and trash their university's reputation.
     
    Bob, Valentijn, Dolphin and 2 others like this.
  11. Yogi

    Yogi Senior Member

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    So on Tuesday night 9pm GMT 6 September this letter was sent and received on morning of 7 September.

    And on Thursday morning 9am 8 September Simon Gaskell resigns

     
  12. adreno

    adreno PR activist

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    No reason to believe it is more than a coincidence. At 67 it's pretty normal to retire.
     
    Valentijn, Hutan and worldbackwards like this.

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