Discussion in 'Upcoming ME/CFS Events' started by Ember, Feb 16, 2015.
In memory of Vanessa Yeuk Lin Li
Dear M.E. Community:
Karen Goode is planning a "virual vigil" for Vanessa Li for TOMORROW and she still NEEDS HELP with several tasks such as editing images of Vanessa, posting things to the vigil facebook (or other site) page (not up yet) before and during the "vigil" and help with uploading video and opening and moderating the live chat.
The vigil will consist of a viewing of Vanessa's memorial service and some means to share your memories of Vanessa, most probably by IM chat.
It is scheduled for tomorrow, Weds, 1pm EST, but could be pushed back if we don't get enough help.
PLEASE PM me and Karen if you can help (preferably on Facebook, but if you don't have a fb, you can PM me here). Please also share this message. Thank you!
"She wanted her body to be donated for the purpose of researching ME. We have already arranged for this to happen."
Is there some way, some place where any of us could donate our bodies to ME research?
Thanks to the Li family and thanks to Vanessa for all she did for us.
May her death have some kind of impact on those who could and can do better in finding the cause and treatment of this damned disease. It might help those of us who haven't yet taken the same step.
@Iquitos I was wondering about this as well and if there is a way to specify in your will that you would like this to occur? To clarify, I know you could write it in a will and tell your family of your wishes, but how is it executed? Are there doctors or scientists doing this research now? If anyone had specific info, that would be great. Thank you in advance!
Why not ask your doctor what he would suggest. I have started these enquiries myself.
Let's move this discussion to the thread Autopsy Options and separate it from Vanessa's Online Vigil.
In memory of Vanessa Yeuk Lin Li
Note: "this page" is the Facebook page linked above.
For Virtual Vigil final, detailed information: https://www.facebook.com/events/392632050908413/?ref_newsfeed_story_type=regular
Today Feb 18 at 1:00 PM Eastern time. Link to YouTube page:
To signup for YouTube, please click here: https://accounts.google.com/SignUpW...n&next=%2Fupload&feature=redirect_login&hl=en
The chat room is available for use only for Google Plus subscribers, which one can enable through the same YouTube/Google account.
Video Broadcast postponed for technical reasons:
@Sushi thank you for letting us know that the video of Vanessa's service has been postponed.
Thank you to the Li family for sharing the service and program with us and it is such a loving gesture. Please take your time and do not stress about when it is ready. We are here whenever that time may be.
I just read through the entire program and was so touched by all the comments at the end showing how much Vanessa had impacted the lives of those around her, including many here on PR. Thank you for sharing her poetry with us as well. She had many talents.
Is it in today in an hour?
Today at 1 pm Eastern time:
It looks like they have disabled the chat function for this broadcast. If any PR members are watching and would like to have "company," the chat room here is available, just sign into chat in the lower right hand corner of the screen and click on the "people" icon.
Jeremy should be opening chat and Comments on YouTube at 1 pm Eastern. There will be a "welcome" message, and then feel free to pay respects.
Thanks for letting us know. Will there be a prompt to sign into Google?
You're welcome! Patients should actually create a Google account beforehand to participate in the chat room, which will be located to the right (or underneath) of the memorial service viewing box. Signup here: https://accounts.google.com/SignUp?...ps://plus.google.com/?hl=en&gpsrc=gplp0&hl=en
Jeremy decided to have only one chat room; therefore, we will be unable to post in the YouTube Comments box.
I have a Google account but wonder if there will be a prompt to sign into it on the Youtube event or if chat will work if you are signed into Google elsewhere?
The chat appears on the top right.
Can you login to the Virtual Vigil for Vanessa Li YouTube page and refresh your screen? Is it not showing up for you?
You can also try a Google Site Search
Separate names with a comma.