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One of founders of Chilli ME challenge describes her negative experiences of a (UK) "CFS/ME" clinic

Discussion in 'General ME/CFS Discussion' started by Dolphin, Jul 17, 2015.

  1. Dolphin

    Dolphin Senior Member

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    One of the founders of the Chilli ME challenge describes her negative experiences of a (UK) NHS "CFS/ME" clinic where a physiotherapist (=physical therapist in some countries) gave her a psychiatric diagnosis and hypochondria label.

    (8 minutes 36 seconds)

     
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  2. Sushi

    Sushi Senior Member Albuquerque

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    Gee, researching your illness means you are a hypochondriac? Why do they publish open access studies then--most M.D.s would not need for them to be open access. :confused:

    I guess they would prefer that "we" come into our doc's office saying something like "I feel like crap all over, I can't walk, I feel like I have the flu all the time, what do you think might be wrong? As opposed to handing them published studies that match our symptoms and being able to discuss possibilities with some level of knowledge.
     
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  3. minkeygirl

    minkeygirl But I Look So Good.

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    I took some basic info to a doc one time and he threw it in the trash right in front of me. That was my first and last appointment with that guy.
     
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  4. Effi

    Effi Senior Member

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    :eek:
    Imagine if we all made a list of these kind of anecdotes, it would be so long...

    Btw is anyone else noticing that our illness lately is becoming more and more public on all kinds of media? Or is that just a coincidence? Anyhow, I'm liking it!
     
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  5. Bob

    Bob

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    That's got to be one of the most dismissive and passive-aggressive acts by a doctor that I've come across.
     
    Last edited: Jul 17, 2015
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  6. ahmo

    ahmo Senior Member

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    Not fit to be labelled ME/CFS; Hypochondria:mad::bang-head::aghhh::devil:
     
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  7. snowathlete

    snowathlete

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    I think it is great to talk about this, to bring it out in the open and show that this is the sort of crap that us patients are being treated with. I agree that we are getting more media attention now, and I think that's partly because us patients are educating people about the reality of the disease in lots of different ways. I think that's a very good thing.
     
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  8. Scarecrow

    Scarecrow Revolting Peasant

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    Impressive skill sets there. I wonder if my dentist will do my next cervical screening test.
     
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  9. Roy S

    Roy S former DC ME/CFS lobbyist

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    Does that mean that PACE paved the way for the Chili ME Challenge?

    ...since they claimed that PACE paved the way for the IOM report... ;-)
     
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  10. Sean

    Sean Senior Member

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    Will PACE pave the way for global peace?

    Just asking.
     
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  11. worldbackwards

    worldbackwards A unique snowflake

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    PACE paved the way for ME. It is the fount of all the knowledge that has ever been produced in scientific history. It is in fact a scientific collossus. It bestrides the world with a twinkling eye and a hammering fist. It knows if you've been bad or good, so be good for goodness sakes.

    PACE is life. And life, surely, is PACE. Where would we be without it?
     
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  12. Forbin

    Forbin Senior Member

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    The evidence is compelling...
    [​IMG]
     
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  13. msf

    msf Senior Member

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    Another win for the NHS!
     
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  14. Sean

    Sean Senior Member

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    Whenever you're sick and feeling down
    a shot of PACE will bring you round

    Reset your thinking, grade your steps
    For all of us, and at all times

    PACE, PACE, PACE is best!

    (Written and authorised by ME.)
     
    Last edited: Jul 18, 2015
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  15. Sean

    Sean Senior Member

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    Nice one, Forbin. :lol:
     
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  16. maryb

    maryb iherb code TAK122

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    Oh no, I have a dentist appointment in a couple of weeks, hope I can erase that thought:jaw-drop::eek:
     
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  17. Sidereal

    Sidereal Senior Member

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    Since when is it the role of physiotherapists and OTs to diagnose and treat disease? UK fatigue clinic: a place where you get told by a barely credentialled pseudo medical professional that you don't have ME/CFS because they don't understand your symptoms.
     
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  18. snowathlete

    snowathlete

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    War is PACE
    Freedom is CBT
    GET is Strength​
     
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