Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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OMI big data study receives $500,000 donation

Discussion in 'Fundraising' started by John Mac, Dec 7, 2015.

  1. John Mac

    John Mac Senior Member

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    Just received this email from the OMI

    Edit: Just realised this news was originally announced on their website on November 11th.
    Though I think it's now started is new info.

    It’s happened again! A very generous anonymous donor has expressed confidence in Open Medicine Foundation (OMF) research by donating $500,000 to expand the OMF ME/CFS Severely Ill Big Data Study.
    As you may recall, just a few months ago, we reached our goal of $1 million to do the Severely Ill-BIG DATA Study, which is Phase 1 of the End ME/CFS Project.
    How this big donation will help:
    With these new funds, we have increased the types and number of tests that will be included in the OMF ME/CFS Severely Ill-BIG DATA Study. This study will give us a thorough, deep-dive and comprehensive molecular profile of severely ill ME/CFS patients. You can see the revised description of the study, with the new tests/categories to be run, at this link.
    More details of the tests included will be forthcoming. This study has now been launched and will take 9-12 months.
     
    Last edited: Dec 7, 2015
    SB_1108, ghosalb, Esther12 and 26 others like this.
  2. adreno

    adreno PR activist

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    Wow, wow and more wow. I wonder if it's the same donor who gave to Colombia.
     
    Marky90, Sidereal, shahida and 2 others like this.
  3. SOC

    SOC Senior Member

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    This is wonderful news! I'm SO grateful to this anonymous donor. I wish we could thank him/her/them directly.
     
    Bob, Sean, Otraust and 8 others like this.
  4. *GG*

    *GG* Moderator

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    Concord, NH
    Yes, thank you so much for your donation! You are a silver lining in our grey clouds :)

    GG
     
    SB_1108, Bob, Never Give Up and 4 others like this.
  5. Sasha

    Sasha Fine, thank you

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    Terrific that big donors are weighing in here, and that's testament to the fantastic efforts of Ron Davis and his family.

    Thank you, big donor!
     
  6. snowathlete

    snowathlete

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    Fantastic news as this enables the End ME/CFS Project to run a great many more tests - if you haven't looked yet, follow that link in the original announcement and see for yourself. More funding will mean they can look at even more. I fully expect this research to pay off in a big way and I am eternally grateful to this donator who has given so generously.
     
    Bob, Never Give Up, Sasha and 4 others like this.
  7. Sidereal

    Sidereal Senior Member

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    Brilliant news! This study could generate some very useful leads.
     
    Bob, aimossy, Never Give Up and 2 others like this.
  8. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    :thumbsup:
     
    Bob likes this.
  9. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    Well a huge thank you to the donor!!
    Very moving that we finally got so many great studies in progress!
     
    Bob, mango and RL_sparky like this.
  10. msf

    msf Senior Member

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    I think we should build a statue (not ourselves) to Anonymous. I then hope Anonymous comes forward to claim the credit, like in Curb Your Enthusiasm (not really relevant, I just love that show).
     
    ghosalb and Marky90 like this.
  11. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Savouring the kindness of this savior. :D
     
    mango and perrier like this.
  12. Daisymay

    Daisymay Senior Member

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    Absolutely wonderful! Thanks so VERY, VERY much to the anonymous donors, thank you x
     
    Bob likes this.
  13. Gingergrrl

    Gingergrrl Senior Member

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    Amazing news and God Bless You to another amazing anonymous donor! :balloons::balloons::balloons:
     
    Bob likes this.
  14. ghosalb

    ghosalb Senior Member

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    How generous of you Mr or Ms donor
    knowing you someday will be a honor
    Even if we can not know you ever
    you will be always in our prayer
     
  15. Groggy Doggy

    Groggy Doggy Senior Member

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    Thank you so much (anonymous donor)!!!!! You have made my day!!!
     
  16. adreno

    adreno PR activist

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    That was probably worth all $500.000.
     
    Groggy Doggy likes this.
  17. Bob

    Bob

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    It's a brand new donation, and not a reannouncement of the 11th Nov donation.

     
    ghosalb, Valentijn and John Mac like this.
  18. A.B.

    A.B. Senior Member

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    Very nice.

    I was thinking the other day that these donations are more than just money. They're a signal that will hopefully encourage others to donate as well, and put pressure on the NIH to contribute.

    These donations are worth more than their nominal amount.
     
  19. John Mac

    John Mac Senior Member

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    Exactly
    Wasn't it when the Norwegian ME group got halfway to funding the latest Rituximab trial that the Norwegian government relented and decided to fund the other half.
     
    Bob likes this.

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