The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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#OMFScienceWednesday-Ron Davis speaks about ME/CFS at UT Dallas

Discussion in 'General ME/CFS News' started by Ben H, Jan 31, 2018.

  1. Ben H

    Ben H OMF Correspondent

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    Hi guys,

    It’s #OMFScienceWednesday! Last week, Dr. Ron Davis, our Scientific Advisory Board Director and Director of the Stanford Genome Technology Center, was invited to the University of Texas at Dallas, to speak in their Green Systems Biology Distinguished Lecture Series.

    He used the opportunity to introduce ME/CFS to approximately 300 biology and bioengineering researchers at UT Dallas, and to present the many technologies being developed at SGTC in the context of their application to ME/CFS. The audience was amazed by what they learned about the disease.

    Dr. Davis’ introductory remarks about ME/CFS were interrupted by a professor asking, “Isn’t this a very rare disease?” He responded by pointing out that ME/CFS is more common than Parkinson’s Disease, multiple sclerosis, and AIDS – making it a major disease. The audience’s reaction was shock, prompting another interruption: “How can a disease this common not be widely known?”

    After bringing the audience up to speed on the unfortunate reasons that ME/CFS is not more widely known and researched, Dr. Davis presented the OMF-funded research his lab is doing to develop better understanding, diagnosis, and treatment of ME/CFS using cutting-edge technologies. The audience was so intrigued that they stayed for another hour to ask questions, and Dr. Davis didn’t see anyone leave. (This is extremely uncommon for a research seminar, especially one late in the afternoon!)

    They were amazed at the frequency and severity of the disease, and fascinated by the nature of the research – perhaps what’s most promising is that some asked how they could get started on researching ME/CFS.

    We are grateful to Dr. Michael Zhang, Professor and Director of the Center for Systems Biology at UT Dallas, for inviting Dr. Davis to present this lecture. We are hopeful that Dr. Davis’ lecture and similar efforts will continue to spread awareness of ME/CFS in the research and medical communities, and encourage more brilliant minds to study this very important disease. Dr. Davis is definitely eager to give more talks of this nature! #EndMECFS

    Read more about Dr. Davis’ talk and similar efforts to increase awareness:
    https://www.healthrising.org/forums/threads/ron-davis-talks-on-me-cfs-and-texas-listens.5823

    Also on OMF website: https://www.omf.ngo/2018/01/31/ron-davis-ut-dallas


    Thanks guys,


    B


    @Janet Dafoe (Rose49) @AshleyHalcyoneH
     
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  2. rel8ted

    rel8ted

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    More interest should lead to more researchers and hopefully, some useful treatment for us! Thankful that Ron and @janet Dafoe have chosen to do something to help the community. It would have been easy to focus all of their efforts on Whitney. We all owe Ron a huge debt of gratitude for using his brains, talent, and energy to solve the ME/CFS puzzle.

    It is very encouraging to hear about the Q&A session.
     
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  3. Countrygirl

    Countrygirl Senior Member

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    Is there any way we could persude and fund Dr Davis to do a speaking tour of the UK? We could use the post-graduate medical schools and the universities.
     
  4. Ben H

    Ben H OMF Correspondent

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    Great idea, I would LOVE this to happen and it is needed so, so much. I will feed it back.


    B
     
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  5. Countrygirl

    Countrygirl Senior Member

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    Good stuff!

    I can think of a couple of good doctors we all know who might accompany him.

    In my distant past I used to arrange lectures by ME specialists and scientists in our local post-grad medical centre and the unversity. Back then so many doctors attended that even the aisles were full of medics sitting on the floor as all the seats were taken Then the BPS message was spread around the country...................the interest was killed dead and contempt, shaped by SW and co, took its place. Maybe it is time to try again?? Perhaps use snippets of Unrest with Ron lecturing and a couple of docs also presenting. This could grow legs. :)

    How much are plane tickets from the US to England?
     
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  6. Strawberry

    Strawberry Senior Member

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    Oooh, I'd almost go with them just to watch the new legs grow. But I doubt I could travel that far...
     
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  7. Soup Dragon

    Soup Dragon

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    The presentation in Dallas sounds incredible! I agree - it would be fantastic to invite Dr Davis to come and speak here in the UK! :)
     
  8. Wayne

    Wayne Senior Member

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    @Ben H,

    Wow, just amazing. Thanks much Ben for the post and update! :thumbsup:
     
  9. Joh

    Joh Inactivist

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    The talk sounds awesome!!! :balloons:

    But I'd rather let Prof. Davis do his research than travel through the UK. And there are also 193 other countries with ME which would also like a speaking tour.
     
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  10. Gingergrrl

    Gingergrrl Senior Member

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    @Joh We need to clone him so he could travel to each country. I'm (half) joking and I know he is spread so thin already. Thank you @Ben H for posting this update.

    It seems that med students are not taught about anything that deviates from traditional illness, even here in the US, (ME/CFS, POTS, MCAS, etc) and it is truly a crime against sick patients.
     
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  11. Soup Dragon

    Soup Dragon

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    Oh, absolutely! His time is precious.

    I wonder if a webinar might be a possibility. That could potentially reach a lot of people in different countries.
     
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  12. perrier

    perrier Senior Member

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    Dr Davis is doing a remarkable and very difficult and very exhausting job. We all send him strength and health.

    May I ask: does anyone know how the research is going with regard to treatment? Is there anything at all in the pipeline?
     
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