Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

OMF Newsletter September 2017

Discussion in 'Latest ME/CFS Research' started by Ben Howell, Oct 2, 2017.

  1. Ben Howell

    Ben Howell OMF Correspondent

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    Hi guys,

    Exciting news below:

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    Triple Giving Tuesday is Coming Soon

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    We are thrilled to announce we will once again celebrate #GivingTuesday as #TripleTuesdayOMF. Jack and Dilla Cosgrove and Family have generously pledged up to $100,000 to triple your support for research.

    If you give $250, the Cosgrove family will match $750 and your gift will be worth $1,000. WOW!

    We are tremendously grateful to the Cosgrove Family and encourage you to donate to our Triple Giving Tuesday campaign. The campaign will begin on Tuesday, October 17 and will continue through Tuesday, November 28. (Photo Jack Cosgrove, Dilla Cosgrove, Jill Von Ebers, Chris Quinn, Linda Tannenbaum)

    International Giving Tuesday has become the single largest day of philanthropy around the world. OMF will once again celebrate this international movement as #TripleTuesdayOMF #GivingMEday #UnselfieME

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    OMF Strengthens Our International Ties
    The End ME/CFS Worldwide Tour has built many new international alliances. We are thrilled to share that with the help of a team of over 30 volunteer translators, OMF will soon be sharing our news and newsletters in the following languages.

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    • Croatian
    • Czech
    • Dutch
    • French
    • German
    • Italian
    • Japanese
    • Norwegian
    • Polish
    • Portuguese
    • Serbian
    • Spanish
    • Swedish
    We have added a new translation section on our website to make these easy to find and share. We invite you to share them with your family and friends around the world.


    End ME/CFS Worldwide Tour Continues with New Partnership

    Linda Tannenbaum has been a strong supporter of Jennifer Brea since she began her extraordinary community building and advocacy efforts by founding #MEAction. We are pleased to announce that we have taken our partnership to a new level.

    OMF is now an official partner of the Time for Unrest global impact campaign, which seeks to increase awareness, research, education and funding for ME.

    The campaign accompanies the award-winning documentary, Unrest, directed by Jennifer Brea. Since joining Jen for the film's debut at the Sundance Film Festival, we have partnered with her at several screenings. We are delighted to include Unrest at some of our upcoming Worldwide Tour events. (*These events will screen Unrest.**Q&A with Dr. Ron Davis, Dr. Janet Dafoe and Ashley Haugen following Unrest screenings.)

    Please visit the Unrest film site for complete international screening and special Q&A schedule, and visit our website to learn about upcoming Worldwide Tour visits.

    October 2** - Menlo Park, CA
    October 2* - Santa Monica, CA (panel discussion with Jen Brea)
    October 15* - Dana Point, CA
    November 1 - New York, NY
    November 4 - Boston, MA
    November 11* - Fullerton, CA
    February 11 - Los Angeles, CA

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    Thank you for participating in the Coins For A Cure campaign. We look forward to receiving your donations. Join Team OMF with your own creative fundraising events. We are thrilled to receive donations of any size. -- Every donation helps accelerate research.


    Back to School - Help Our Kids Succeed

    New tools are available to help parents and children manage school related challenges.
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    Make this back to school season a better one for children with ME/CFS. Thank you once again Faith Newton, PhD, Delaware State University, for creating such useful tools to help our children.

    Parents: We encourage you to review these helpful materials, print them and share them with your local school.



    Does Your Company Have An Employee Giving Campaign or Matching Gift Program?

    We want to make giving to OMF easy for you. If your company has a matching gift program you can double your impact. Check with your HR department to see how you can make your gift go twice as far.

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    OMF is a proud charity partner of Community Health Charities (CHC). CHC is a nonprofit that raises awareness and resources for health and wellness by connecting the most trusted health charities, including OMF, across the United States with more than 17 million caring donors through workplace giving campaigns, causes, wellness programs, employee engagement, and strategic partnerships. If your employer is a partner of CHC (or any Employee Giving Campaign), please designate your gift to OMF and encourage your colleagues, family and friends too.



    A Word from our CEO/President

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    A major focus at OMF is to keep patients informed and involved in research. Our recent Community Symposium was a perfect example of this. We brought together and educated thousands of people from around the world through the livestream and Youtube video. We will continue to use the Symposium model to keep you informed.

    We know that working together as a united community we are stronger. We look forward to continuing to grow our research efforts with you as our partners.

    With hope for all,

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    Linda Tannenbaum
    CEO/President
    Linda@omf.ngo

    Our Purpose:
    • To fast-track revolutionary research for ME/CFS and related chronic complex diseases.
    • To support collaborative scientific research to discover molecular causes, find effective treatments, diagnostic markers, prevention approaches and cures.
    • To communicate, engage and inform the patient community.
    • To help drive & support global collaboration
    Join TEAM OMF.
    There are many ways to support our research.

    Turn Your Online Shopping
    Into Donations for Research

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    Donate your old car, boat or plane
    and turn it into $$ to support research.
    (Available in the US only)

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    Create your legacy.
    Please consider including OMF in your will & estate plans. Learn more.


    Host an Event or a Non-Event on CrowdChange.
    Invite family and friends to donate. Learn more about other
    Team OMF events and create your own fun.

    [​IMG]Like Our Page [​IMG]Follow us

    ;

    Please visit our website




    --
    Marilyn
    Marilyn Simon-Gersuk
    Director of Communications & Development
    Open Medicine Foundation® (OMF)
    www.omf.ngo (formerly www.openmedicinefoundation.org)
    650-242-8669 office; 818-645-2994 mobile
    Fast-tracking revolutionary research for ME/CFS
    & related chronic complex diseases

    Please note that effective immediately we have shortened our URL. Our new website address is www.omf.ngo and my new email address is marilyn@omf.ngo


    Thanks guys,


    B

    @Janet Dafoe (Rose49) @AshleyHalcyoneH
     
    nandixon, mango, PinkPanda and 16 others like this.
  2. Joh

    Joh Inactivist

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    Awesome! :moneybag::pill::heart:
     
    mango, Solstice, Binkie4 and 2 others like this.
  3. Ben Howell

    Ben Howell OMF Correspondent

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    Indeed!

    #TripleTuesdayOMF starts on October 17th- November 28th.


    B
     
  4. justy

    justy Donate Advocate Demonstrate

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    Brilliant news!
     
    Ben Howell, Solstice and Joh like this.

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