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Olympic Skier beat Lyme Disease

Discussion in 'Lyme Disease and Co-Infections' started by Sushi, Feb 8, 2014.

  1. SOC

    SOC

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    Did you do antibody tests, or just PCR for Bartonella? I'm negative by antibody, so I think the doc is therefore not planning a PCR test. I'm wondering if that is reasonable, or if antibody tests often miss Bartonella.
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I did antibodies with Igenex but Ignenex only tests for antibodies on 3 strains of Bartonella (as I remember) and there are over 30 strains. I think Igenex tests mostly for the cat-scratch strains and those are not the ones being found most often in ME patients.

    The PCR that that I had tests for many more strains. Galaxy Lab in NC is the Bartonella "king" (queen?) in the US I think. The PCR test I did was Redlabs.

    Sushi
     
    justy, SOC and merylg like this.
  3. paquito

    paquito

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    Hi Joshi,

    Yes I'm the pyroluria one, nice to see you again!

    The test was antibodies, less than 40% accurate so really pretty useless, it came back negative.

    Do you have any contact details for Dr Trevisan?

    Cheers
    P
     
  4. joshi81

    joshi81 Senior Member

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    Paquito you can phone to his secretary to take an appointment 040 3992056 that's her number.
     
  5. Alexandru Matei

    Alexandru Matei

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    I was also diagnosed with Lyme and co-infections in the summer of 2012, but I was suspecting something is going on for a much longer time. I just went through a horrible time lately, it's slowly getting better with treatment.

    This is such a complicated disease, the co-infections are the hardest to treat (test are unreliable too) so it's hard even for doctors to treat it properly due to unreliable testing. Often co-infections are missed.
     
  6. joshi81

    joshi81 Senior Member

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    Hi alexandru, wich testdi u run which came back postive?
     
  7. end

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    Last edited: Feb 24, 2014
  8. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    She just skied today. It was just on NBC's rebroadcast. They mentioned that she had beat Lyme and that it was a triumph that she was competing. Unfortunately she fell, but she competed.

    Sushi
     
    Valentijn likes this.
  9. abporter

    abporter

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    T
    Thanks for sharing Sushi. I just watched it and my eyes watered up several times. Skiing was the sport that I was best at and loved the most. It was encouraging to see that even though it may take years of treatment, it is possible to recover. :)
     

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