Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Olli Polo (Finland) in trouble for treating PWME

Discussion in 'General ME/CFS News' started by mango, Sep 6, 2017.

  1. mango

    mango Senior Member

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    ScottTriGuy, Jo Best, Joh and 4 others like this.
  2. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    English version:
    https://translate.google.com/transl...otimaa/201709042200370930_u0.shtml&edit-text=

    English version:
    https://translate.google.com/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=http://www.iltalehti.fi/kotimaa/201709052200373968_u0.shtml?_ga=2.81266007.1742375126.1504733477-191140113.1504626999&edit-text=

    :thumbsup:
     
    Last edited: Sep 6, 2017
  3. AndyPR

    AndyPR Senior Member

  4. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Thanks, Fixed it (I think).
    :thumbsup:
     
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  5. TigerLilea

    TigerLilea Senior Member

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    I get the following message:

    "This page was not retrieved from its original location over a secure connection."
     
  6. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    I can't fix that. Sorry.
    [​IMG]
     
    Luther Blissett likes this.
  7. AndyPR

    AndyPR Senior Member

    Are you still able to see the translation?
     
    Luther Blissett likes this.
  8. TigerLilea

    TigerLilea Senior Member

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    No, I can't. I just get that message.
     
    AndyPR likes this.
  9. Snow Leopard

    Snow Leopard Hibernating

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  10. JES

    JES Senior Member

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    Olli Polo was basically the only doctor treating CFS patients in Finland. He was seeing approximately a thousand patients, who are now left without treatment, so the situation is somewhat of a catastrophe. AFAIK the main treatments he uses are LDN, adrenaline and oxygen therapy. The supervisory authority who banned his private practice argued that his treatments "danger the safety of patients" and that "it's not normal that such a large number of CFS diagnoses come from one doctor". Needless to say, the reason for the large number of CFS cases diagnosed by Polo is that CFS patients have no other doctor to go to. Regarding dangering the safety of patients, I'm not aware that has actually happened. In the latest statement I got the picture that the issue seems more about using experimental / off-label treatment on a large number of patients. Ultimately, probably the main issue is that these CFS diagnosed patients are a burden to our social welfare system, as they can't be ignored as easily with an official diagnosis.

    The experiences I've had from using LDN is that it improves my sleep and reduces my neuropathic pain. I guess I'll do without it, but apparently some patients have seen large benefits from it, and are now likely left without.
     
  11. Joh

    Joh Inactivist

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    Someone from MEAction asked in another group if someone could write this story up. They are thinking of ideas how maybe public pressure could be applied with MEAction. No Finnish people in the other group, so they'll ask the Finnish ME association. If any of you have ideas or know the story and would like to write about it, you could contact MEAction.
     
    slysaint, Molly98, mango and 3 others like this.
  12. AndyPR

    AndyPR Senior Member

    Perhaps @Mike Harley will still have a contact in Finland?
     
    Jo Best, mango and Joh like this.
  13. Joh

    Joh Inactivist

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    MEAction said they don't have time to organize this, but would be willing to publish a story and promote some sort of campaign and provide MEAction support to whatever Finish patient activists want to do. First thing would be someone needed to write things up.
     
  14. Joh

    Joh Inactivist

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    Latest news is that the decision of the county has been overturned and Olli Polo is waiting for the state to decide.
     
  15. Jo Best

    Jo Best Senior Member

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    http://unesta.fi/index.php/45-hallinto-oikeus-kumoaa-valviran-antaman-varoituksen

    Administrative Court annuls Valvira's warning
    In its decision of 7 September 2017, the Hämeenlinna Administrative Court annulled the warning issued by Valvira on January 19, 2015 to Uncle Olli Polo and returned the case to the referral. A new scientific report has emerged during the course of the 2013 review, which has not been known to Valviva when it has made the decision under appeal. The Administrative Court also notes that Section 31 of the Administrative Procedure Act (586/1996) states that a decision which may be appealed against can not be enforced before it has become final. The Valviran's decision contains an erroneous statement of the immediate implementation of the decision.
     
    Susanna D, mango, TiredSam and 3 others like this.
  16. Jo Best

    Jo Best Senior Member

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  17. Mike Harley

    Mike Harley

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    Bristol
    Hi Andy

    I can put people in touch with the Finnish ME Association if someone else hasn't done so already, just let me know.

    Thanks

    Mike
     
  18. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    Well it ought to be needless to say. Do people have to pass some kind of stupidity test to serve on this supervisory authority? {Posted by Little Bluestem's evil twin}
     

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