Thanks Sparrowhawk, my BP wasn't terrible throughout this whole ordeal but when they took it I was mostly lying down, then sitting, then standing but not long enough. I said let me pretend like I'm vacuuming. That's the problem but I've had two tilts and an autonomic test that were abnormal years ago. Never before has OI been a problem more than ME/CFS/FM but now I feel awful out of bed. Even in the hospital I slept and made my bed into a little cocoon with pillows because I was so weak and vulnerable. I could have slept the entire time.