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'Occupy @NIHdirector campaign' on Twitter

Kati

Patient in training
Messages
5,497
Join me in a Twitter campain to 'Occupy @NIHdirector' (Francis Collins twitter account).
i have several tweets on my twitter account @Katiissick, feel free to retweet or to make your own tweets asking for funding parity.
 

Kati

Patient in training
Messages
5,497
I Thought It Was a Typo…" Researcher new in #mecfs field comment on the state of #NIH funding solvecfs.org/i-thought-it-w… @NIHDirector #Congress (https://twitter.com/Katiissick/status/634881116042760192?s=17


A Family Tells the Personal Impact of #mecfs @NIHDirector a whole disease is left behind. Pls do something #hcldr openmedicinefoundation.org/2015/08/13/a-f… (https://twitter.com/Katiissick/status/634829230707097600?s=17)

Responses to NIH who is trying 2explain why grant application from Nobel laureates was refused. #stigma @NIHDirector meaction.net/wp-content/upl… (https://twitter.com/Katiissick/status/634486179790999553?s=17)


Ron Davis on why his NIH proposal was rejected meaction.net/2015/08/20/ron… @NIHDirector @NIAIDNews #Congress (https://twitter.com/Katiissick/status/634485550951612416?s=17)

My public comment for today's #CFSAC meeting: @NIHDirector Go Fish! occupycfs.com/2015/08/17/cfs… (https://twitter.com/knittahknits/status/633832735723810816?s=17)
 

beaker

ME/cfs 1986
Messages
773
Location
USA
Join me in a Twitter campain to 'Occupy @NIHdirector' (Francis Collins twitter account).
i have several tweets on my twitter account @Katiissick, feel free to retweet or to make your own tweets asking for funding parity.

Great idea @Kati I've been RT ing . Hope we can get others to look at them and do the same. Thanks for getting the ball rolling on this.
 

Kati

Patient in training
Messages
5,497
My retweet of the day comes from @JanetDafoe, Ron Davis's wife:

"@TomKindlon@firestormer Ron Davis is going to apply for NIH funding every cycle. He is never giving up!" #MEcfs @NIHdirector

let's occupy @NIHdirector Crancis Collins and Secretary Burwell (@SecBurwell)
Feel free to retweet from my account @katiissick, modify tweet, or make new tweets.
 

beaker

ME/cfs 1986
Messages
773
Location
USA
Tweet for today:

An Open Letter from Researchers 2 Sen Mikulski: Pts suffering from #MEcfs deserve $ cfstreatmentguide.com/1/post/2015/08…@NIHDirector#Congress

Feel free to copy and paste, alter, or simply retweet from my twitter account. Each retweet or tweet as is sends a notification to Dr Collins about ME. Let's Occupy NIh director. :sluggish:

I retweeted to other Congressional House and Senate Members on appropriation and health committees, as well as Congressional leaders. Please RT and/or favor ! Yes, even if you already have RT the original link Kati gives.
OK to do it even if not US citizen !
There are 11 tweets in all to cover all these reps. But the hard part is done. Just a few clicks please.

https://twitter.com/beaker1986/status/637570396750004224
https://twitter.com/beaker1986/status/637570318853402624
https://twitter.com/beaker1986/status/637570248498151424
https://twitter.com/beaker1986/status/637570119191908352
https://twitter.com/beaker1986/status/637570036677410816
https://twitter.com/beaker1986/status/637569926182633473
https://twitter.com/beaker1986/status/637569829470380032
https://twitter.com/beaker1986/status/637569737053110272
https://twitter.com/beaker1986/status/637569659622039552
https://twitter.com/beaker1986/status/637569545255976961
https://twitter.com/beaker1986/status/637568978911653888

Thank you ! Let our voices be heard !
 

ahimsa

ahimsa_pdx on twitter
Messages
1,921
@beaker, great job! I just marked them all as favorites - hope I got all of them!

I was too embarrassed to re-tweet since it was my tweet you copied. I don't know twitter etiquette but it seems too self-aggrandizing for me to re-tweet something which has my own tweet embedded in it.

(online early today because I've got other stuff to do and won't be back until tomorrow or Monday)
 

Kati

Patient in training
Messages
5,497
Done! It took just a minute.
 

beaker

ME/cfs 1986
Messages
773
Location
USA
@beaker, great job! I just marked them all as favorites - hope I got all of them!

I was too embarrassed to re-tweet since it was my tweet you copied. I don't know twitter etiquette but it seems too self-aggrandizing for me to re-tweet something which has my own tweet embedded in it.

(online early today because I've got other stuff to do and won't be back until tomorrow or Monday)

If you are retweeting the same message only tweeting to target tweeters, I think it's ok. Or better yet, retweet your original and just cut and paste the names to it.
In other words : retweet your original not my retweet ! and add the names.
wow I think I am talking in circles. Hopefully you can figure out what I am trying to get at !
I have edited a couple times trying to make it sound better but bad brain fog setting in.

Thanks for jumping in on this your first tweet started it all !

Have a nice weekend.
 
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Kati

Patient in training
Messages
5,497
Another tweet for today:

Pts who got #mecfs from '84 Tahoe and Lyndonville epidemic r either still sick, contracted cancer or r dead. We are millions @NIHdirector

Let's occupy NIH director.