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Occupy M.E. (Jennie Spotila): Fact Checking, Dr. Nath

Discussion in 'General ME/CFS News' started by mango, Aug 23, 2016.

  1. mango

    mango Senior Member

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    http://occupyme.net/2016/08/23/fact-checking-dr-nath/
     
  2. JaimeS

    JaimeS Senior Member

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    Mid-Ohio Valley, United States
    Uh oh. Off to read....
     
  3. Nielk

    Nielk

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    Spreading rumors of allegations of threats by ME patients is an often used tactic in an attempt to silence any criticism of government health agencies's actions - no matter how factually based they are.

    This is a tactic of intimidation. It is not enough that we endure neglect and mishandling but we are expected to just accept the abuse in silence. It has become acceptable to defame anyone who dares to criticise - no matter that it's based on facts.

    Some of our best advocates have left advocacy because of this intimidating tactic - which at times have been really bullying tactics.
     
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  4. dancer

    dancer Senior Member

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    Brilliant research from Jennie, and clearly presented.
     
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  5. viggster

    viggster Senior Member

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    This was a thorough piece of work by Jennie but she did not mention the tweets by a group of patients accusing Dr. Wallit of harming patients & wanting to harm patients.
     
  6. BurnA

    BurnA Senior Member

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    I read this but I don't get it, what facts were checked ?
     
  7. Nielk

    Nielk

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    She proved that your allegations like in this post was a fabrication.
     
  8. duncan

    duncan Senior Member

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    Curious observation from an ME/CFS patient.

    Do you imagine Dr. Wallit will be an asset to this research? If not, why not? If yes, why?
     
    Last edited: Aug 23, 2016
  9. viggster

    viggster Senior Member

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    I apologized for the hyberbole in that post, but it is true that patients on twitter were accusing Wallit of intentionally harming patients. I can't pull up the tweets because I blocked all of them.
     
  10. viggster

    viggster Senior Member

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    Here's one, for example, and directed to Francis Collins to boot. "Hurts very sick patients."
     

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  11. Nielk

    Nielk

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    You mean patients dared to criticize the fact that Wallit teaches that fibromyalgia and CFS is all in the brain? They pointed out that someone who claims patients should just learn to live with their new reality of living with these diseases because no treatment will ever work for something that is imagined in the brain?

    They pointed out that an investigator who has these biased beliefs about an acquired neuroimmune disease should not be part of a study?

    How radical!
     
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  12. Nielk

    Nielk

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    So, you are saying if a very sick ME patient goes to Walitt to be treated and he tells them it's just in their heads - they should just learn to live with it - as this is their new normal, is NOT harmful to patients?

    Francis Collins is the one who keeps investigators like Walitt, Giil and Saligan at the NIH. Why does he employ those who have psych bias of biomedical diseases?

    I question your judgement @viggster - that you think this is fine and bringing this to light and demanding better for a million severely ill patients is wrong.
     
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  13. Webdog

    Webdog Senior Member

    @viggster Many of us have been harmed by treatments from doctors who believe that CFS is all in the head. Some of us for the remainder of our lives.

    PS: I did not write any of those tweets, but I would gladly personally receive a thousand angry tweets if it meant I could reverse the damage of those past medical "treatments".
     
    Last edited: Aug 23, 2016
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  14. Groggy Doggy

    Groggy Doggy Senior Member

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    How were the advocates intimidated or bullied?
     
  15. Groggy Doggy

    Groggy Doggy Senior Member

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    that's slander.
     
  16. Groggy Doggy

    Groggy Doggy Senior Member

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    Its not Walitt's fault that many of us have been harmed, so why take it out on him? If you were Walitt's patient, and he harmed you, then that's another case.
     
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  17. Groggy Doggy

    Groggy Doggy Senior Member

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    If that happened to me, then I would find another doctor to treat me. I don't know what options are available to you? In the US we also have attorneys that will sue doctors for malpractice; additionally we can also file complaints (to get their license suspended or revoked).
     
  18. Denise

    Denise Senior Member

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    I believe some of the concern arose when advocates read articles Walitt co-authored (and presentations he had given) that suggested treatments that are known to be of concern because of their effects on patients. And that would mean that the promulgation of treatment modalities that adversely affect patients is of concern to more than just a patient who was treated by Walitt. So changing healthcare professionals wouldn't solve that.
     
  19. dreampop

    dreampop Senior Member

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    Very intelligent use of the FOIA. Just a disturbing situation taken together with the Chadler comments. You can't speak up for your illness, you just have to take what you get and be thankful for it, and even then you get painted in a negative light. If its really just a few (mildly) negative tweets than I have to say, these are among the most sensitive people on the planet. I can't imagine what they would do if they had to hear all the shit people say to someone with CFS. I guess its a grey area for people not in public office, but for those in it, even friggin Elizabeth Warren can handle the twitter insults (and the ones she gets are more plentiful and ill natured). Anyway, the Burmeister tweet is over the top, but if your arguing the financial impact of calling a disease "not abnormal" or whatever Wallitt said, then you can't really call it slander.

    In fact, I remember that ridiculous thread and how much people wanted to walk on eggshells to accommodate the NIH team. I get it too, you never want to make your disease look bad, but at some point you have to be able to speak up and hold people accountable: and other patients and the medical community should never paint you in a falsely negative light for doing that, that's why I think this is such a "disturbing" situation.
     
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  20. Groggy Doggy

    Groggy Doggy Senior Member

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    Maybe I need to drink a cup of coffee....but Walitt is not treating patient in the NIH ME study. So you are saying that Walitt treats patients at the NIH, and because of his past videos, it is assumed he is harming them?
     

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