Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Occupy CFS: 'Awareness reboot' by Denise Lopez-Majano

Discussion in 'General ME/CFS News' started by Sasha, May 6, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Excellent guest-post on Jennie Spotila's blog today, some of which seems to have arisen from a discussion here on PR:

    http://www.occupycfs.com/2015/05/05/awareness-reboot/

    If your blood pressure can stand it, more on the blog on the problem and the solution...
     
    catly, ahimsa, ahmo and 4 others like this.
  2. Denise

    Denise Senior Member

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    Last edited: May 9, 2015
  3. Denise

    Denise Senior Member

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    Somehow I messed up the above...
    My response to @Sasha is
    I have been mulling over this proposal for an awareness reboot for several months (before the IOM report was released).

    Discussions on PR have strengthened my view that we do not have the resources to address each instance of disdain, disbelief etc. That in turn has strengthened my view that we need an awareness campaign as part of an overall policy reboot regarding anything and everything to do with this horrid disease.

    And I appreciate the discussions that helped me further develop this proposal.
     
    Sasha likes this.

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