Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Number of PACE Trial FOI requests and how they are counted (Valerie Eliot Smith)

Discussion in 'General ME/CFS News' started by Tom Kindlon, Dec 16, 2015.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    Well done to Valerie for her work on this.

    [I don't think Valerie has shared this before publicly but she has previously shared it to me. An important point is that if one person asked for 10 pieces of data, Queen Mary, University of London and Peter White counted that as 10 requests. This means people could think there were more requests than there actually were (here a total of 150 from 2010 to this point in 2014 represented 34 requests for data over that period or fewer than one request per month. Tom]


    http://bit.ly/1QswU8v
    i.e.
    https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf

    --------

    This is linked to from Valerie's blog:

    FOIA: a Briefing Note + how many PACE requests?

    DECEMBER 16, 2015

    http://bit.ly/1RoOPNz
    i.e.
    http://valerieeliotsmith.com/2015/12/16/foia-a-briefing-note-how-many-pace-requests/
     
  2. A.B.

    A.B. Senior Member

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    Last edited: Dec 16, 2015
    Valentijn and worldbackwards like this.
  3. Tom Kindlon

    Tom Kindlon Senior Member

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    Valerie has now updated her post:

    https://valerieeliotsmith.files.wor...-request-to-qmul-re-no-of-pace-requests-2.pdf

    It now ends:

     
  4. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    Releasing the data might be a start?
     
    Woolie, Valentijn, SOC and 4 others like this.

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