We've had several CFSAC threads going so I thought it would be good to start one to discuss what happened and maybe what patients should do in response. I'm a Brit and don't understand the structure of the US health research/care/funding system but CFSAC is the only regularly occurring ME/CFS meeting of govt/national-level officials I've noticed. A whole load of issues and frustrations came up, one or two things got done (CDC's representative took back with him a request that the CBT/GET-promoting toolkit be taken off their website immediately, if I understood correctly). I know a lot of people think poorly of what CFSAC has been able to achieve. Is there any discussion we can have that can lead to some actions for better outcomes?