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ME/CFS and Beating the Clock
For Jody Smith, the ticking of a clock was enough at one time to chase her back to her bed. But with the passage of time, she has been able to reclaim her living room ...
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not sure what i have but do u get really nauseous and weak from OH

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by bagd, Oct 26, 2012.

  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Salt tablets make me nauseated but other forms (I use Celtic Sea Salt at the moment) do not. I use it on food and add it to electrolyte drinks.

    Sushi
  2. bagd

    bagd

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    i am so scared that i have one of these awful progressive neuro degenerative disorders....i am praying for CFS!!!!

    oy vey

    i think i should stop reading....
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Don't pray too hard for a CFS diagnosis...cause some of us find that CFS is also "a progressive neuro-degnerative disorder"--though not in the same way as ALS. Not to scare you, but this is one awful illness to live with.

    Agreed, probably not a good idea to surf the web with your symptoms, but targetted reading often takes you farther than doctor's visits.

    Best wishes,
    Sushi
    taniaaust1, ukxmrv and Nielk like this.
  4. bagd

    bagd

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    i think the key word here is live
  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    True, but not all ME/CFS patients manage to do that.

    Sushi
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  6. taniaaust1

    taniaaust1 Senior Member

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    ME/CFS is a shocking illness to have, far worst then you are currently realising, many of us here would rather have cancer.

    I think its best that you dont do too much surfing on what you "may have" right now.. and as aweful as it is.. go along with the doctors and have that tilt table test done.

    It is possible that you may only have a postural orthostatic issue and nothing else. I can feel very nauseous with my dysautonomia and can pass out completely for up to 5mins at a time. If you got this from going off some pills.. if it was me, I'd probably try to go back on them and see if it settles down.

    Also medical compression stockings can be helpful some for most kinds of dysautonomia issues (thou not all).

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