In 2009 i had a "vaccine reaction" to seasonal flu vaccine. It was diagnosed as Gullian Barre Syndrome but i never had paralysis but sensory and weakness. I was really sick for 3 months than recovered. I have had some minor relapses but overall have done well. Six weeks ago I had a few episodes of vertigo waking me at 3am with nausea and vommiting. But i felt ok, not great. Went to the neurologist who wasn't too concerned. I am 47 and have been on oral contraceptives for decades because i have Polycystic Ovarian Syndrome. I decided to stop the OCP and have been spiraling downward. It started to really hit about two weeks after i stopped the pills. I developed really bad orthostatic hypotension and weakness. I get so nauseoaus it is especially bad in the mornings. Crippling weakness. I went to a cardiologist who started me on Florinef. i never had a tilt table test. Most of the doctors i have seen, and i have seen many in the past six weeks want me to go to Mayo Clinic in Rochester. I spoke to a CFS MD who really wants to get me on the tilt table but most of the doctors look puzzled and worried and make me think i have something really hard to diagnose and not CFR. so scared and worried.