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Not really interesting: Goldacre & co speaking out against push to share IPD

Esther12

Senior Member
Messages
13,774
In the BMJ:

Focus on sharing individual patient data distracts from other ways of improving trial transparency
BMJ 2017; 357 doi: https://doi.org/10.1136/bmj.j2782 (Published 22 June 2017) Cite this as: BMJ 2017;357:j2782
  1. Tammy Hoffmann, professor1,
  2. Paul Glasziou, professor1,
  3. Elaine Beller, associate professor1,
  4. Ben Goldacre, senior clinical research fellow2,
  5. Iain Chalmers, coordinator3

http://www.bmj.com/content/357/bmj.j2782

Scihub: http://sci-hub.cc/http://www.bmj.com/content/bmj/357/bmj.j2782.full.pdf

Paul Glasziou is one of the co-authors of the planned Cochrane review of IPD for exercise trials for CFS.

They do have:

All trials for all interventions

[Can't copy/paste easily - but it talks about need for transparency on psych/exercise trials.]

Related More Trials blog with comment from Goldacre underneath:

http://moretrials.net/news-research...ncy-also-makes-much-harder-randomised-trials/

Thought it could be of some interest to others. I found the blog pretty irritatin, but it is past my bed-time.
 

barbc56

Senior Member
Messages
3,657
  • Oh, bull hockey!

  • I only glanced quickly at this opinion piece. IMHO, these requests DO NOT distact from focusing on transparency. It's one piece of the puzzle for the more general goal of transparency in science studies!

  • This reads like a direct response to how patient''s in our community have advocated for trial transparency.
Using this reasoning, one could say that writing this opinion piece takes away time that could be used to advocate for transparency in studies.

Did I read this correctly?

I am very dissapointed with Ben Goldacre. I quite like him but disagree with this particular stance!

PS I can't get rid of the bullet points in the above text nor post emojis. It's my tablet as it tends to do goofy things when I use google. I am just too tired to switch to chrome where I though I was and where I don't have these problems.