Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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(Not ME/CFS-specific) Ethics and evidence-based medicine: is there a conflict? (2007)

Discussion in 'Other Health News and Research' started by Dolphin, Dec 15, 2010.

  1. Dolphin

    Dolphin Senior Member

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    [A doctor with ME/CFS highlighted this to me. It's not new (2007) I thought it was worth highlighting as it is timeless. It is not short but the language isn't too dense. Although the author writes about the US healthcare system, most of the points would apply in many other countries (especially in the UK with NICE). Also because of EBM, patients with ME/CFS are being coerced by insurance companies and others to do GET.]

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    Full free text at:
    http://bit.ly/hhTxuh i.e.
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2100103/
    or
    http://www.medscape.com/viewarticle/559977_8 (one can see replies to the article there) (one can register for free)
     
  2. SOC

    SOC

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    Thanks, Dolphin! I'll get around to reading this when my brain is working again. My local clinic has used so-called "evidence-based medicine" to treat the ME/CFS patients in this family pretty roughly, so I think this is an important topic for us and probably many other PWCs.
     
  3. Angela Kennedy

    Angela Kennedy

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    Essex, UK
    Thanks for this Dolphin.
     

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