Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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(Not important) Piece on CFS on San Francisco public access TV (sf commons)

Discussion in 'General ME/CFS News' started by Dolphin, Mar 20, 2010.

  1. Dolphin

    Dolphin Senior Member

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    Not quite a national news station, but perhaps there will be somebody who finds this little piece of interest (March 13, 2010):

    http://www.blip.tv/file/3338171/
    or
    http://sf.commons.tv/video/20183/search-for-chronic-fatigue-ans

    Andrew Kelly reports on a local girl who has chronic fatigue syndrome

    Kayla Blakley (18) - San Jose

    Mitchell R Lunn is the researcher

    Background:
    http://med.stanford.edu/lgbt/people/lunn.html

    [..]

     
  2. spindrift

    spindrift Plays With Voodoo Dollies

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    Thanks for posting.
     
  3. starryeyes

    starryeyes Senior Member

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    Bay Area, California
    I give them credit for trying but that was pretty lame. Hopefully they'll create better PSAs about ME/CFS. They didn't even mention XMRV! And that guy they interviewed is all, "There are some other patients that kinda fit her situation" or something like that. Oy!
     

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