Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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(Not illness specific) "All Trials Registered | All Results Reported" campaign

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Jan 9, 2013.

  1. Dolphin

    Dolphin Senior Member

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    http://www.alltrials.net/


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    On the site, there's a petition, as well as other information on the campaign. No major friend of the ME/CFS community are involved but we can still benefit e.g. the PACE Trial investigators have said they are not releasing results for some of the outcome measures from the UK£5m trial.
     
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  2. Sean

    Sean Senior Member

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    Sigh. Can't always pick your allies on every issue, I guess.

    I signed. It can only be to our benefit. Eventually...
     
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  3. Esther12

    Esther12 Senior Member

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    Thanks Dolphin.
     
  4. barbc56

    barbc56 Senior Member

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    I just signed!!!! Thanks!!!!:balloons:
     
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  5. Sasha

    Sasha Fine, thank you

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    UK
    Signed. Thanks, Dolphin.
     
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  6. Simon

    Simon

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    Monmouth, UK
    Signed a while ago - just seen it here; good idea.
     
  7. peggy-sue

    peggy-sue

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    Scotland
    done, thanks for the link!:)
     

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