Jen Brea launches mass-advocacy platform — #MEAction goes live!
Jen Brea is a phenomenon. After working as a freelance writer in China and Africa, she enrolled for a PhD at Harvard in political science but, four years ago, got sick. She had a fever that lasted ten days.
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(Not illness specific) "All Trials Registered | All Results Reported" campaign

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Jan 9, 2013.

  1. Dolphin

    Dolphin Senior Member

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    http://www.alltrials.net/


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    On the site, there's a petition, as well as other information on the campaign. No major friend of the ME/CFS community are involved but we can still benefit e.g. the PACE Trial investigators have said they are not releasing results for some of the outcome measures from the UK£5m trial.
     
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  2. Sean

    Sean Senior Member

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    Sigh. Can't always pick your allies on every issue, I guess.

    I signed. It can only be to our benefit. Eventually...
     
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  3. Esther12

    Esther12 Senior Member

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    Thanks Dolphin.
     
  4. barbc56

    barbc56 Senior Member

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    I just signed!!!! Thanks!!!!:balloons:
     
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  5. Sasha

    Sasha Fine, thank you

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    UK
    Signed. Thanks, Dolphin.
     
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  6. Simon

    Simon

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    Monmouth, UK
    Signed a while ago - just seen it here; good idea.
     
  7. peggy-sue

    peggy-sue

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    Scotland
    done, thanks for the link!:)
     

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