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Not fatigue or brain fog... is there another word for this?

Discussion in 'General ME/CFS Discussion' started by drob31, Aug 15, 2014.

  1. drob31

    drob31 Senior Member

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    It feels more like tiredness in the back of my eyes. More like burned out (but not), almost like extreme eye strain. It feels like something is missing, almost like lack of ATP. Physically I'm not tired, and I could go run a mile, and it would actually make me feel better for a little while. My body wants to move, and my legs are sometimes jittery, but my eyes feel tired.

    Is this what low cortisol, or low t3 feels like?
  2. Tired of being sick

    Tired of being sick Senior Member

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    Western PA USA
  3. drob31

    drob31 Senior Member

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    Thanks for the link. That person had Lyme. That's yet another connection to Lyme, I think.

    However, it does seem like everyone with Lyme as neurological issues, which I don't have.

    My eye tiredness would match up more with mold... I think.

    This week I'm getting a h pylori pannel and kidney urine analysis done. Next week I'll do lyme / autoimmune panel.
  4. BadBadBear

    BadBadBear Senior Member

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    Low T3 for me feels like being stuck in amber. Everything feels slow, like I could not move or think fast if I had to. Never could have run a mile on low T3. It makes my body want to not move. YMMV of course!
  5. Martial

    Martial Senior Member

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    there is a lot of allergic type reactions that can cause that, the most immediate one I know of is people sensitive to MSG, or MSG like containing products. Cut it out of your diet completely and see what happens. Burning eyes, and the like is a very common symptom people report.

    http://www.truthinlabeling.org/hiddensources.html

    p.s. I never really was sensitive to MSG before cutting it out, accidently ate MSG contained Gyro meat the other day and was in severe pain for the rest of the night.. Mainly in my gut. That crap is plain toxic for you.
  6. drob31

    drob31 Senior Member

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    Well, I don't feel like running a mile. However, the second I get up and start walking around, or do exersize, or eating something, I feel better.

    I sit at a computer all day, and stare at a bright screen in a cold room. Something tells me this isn't helping my situation.

    So, I have the ability to go run a mile, and I may feel good for a few hours... but it may come back to fatigue me the next day or day after.
  7. drob31

    drob31 Senior Member

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    Thanks for the advice. I don't think I'm getting any MSG. I eat organic eggs for breakfast in coconut oil. Organic salad with chicken for lunch. Maybe a greens organic whole food bar for a snack. And something like grass fed beef and sweet potato for dinner. This is just an example, not exactly what I eat every day. But my diet is 1000000X better than anyone I work with, or know for that matter...

    I suspect it may be an allergy to something like mold.
  8. Martial

    Martial Senior Member

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    Just keep an eye on your labels because sometimes even organic foods can have some forms of glutamate added in, though it seems less likely in your case. Could be mold, or other things the computer in a dark room thing is actually probably the biggest potential cause. That will make anyones eyes burn and hurt like crazy for hours.
  9. Tired of being sick

    Tired of being sick Senior Member

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    Lyme Symptoms can vary uniquely from patient to patient...

    So do not dismiss Lyme just because you do not have ALL the symptoms
    (Lyme bacterial species have been found in MS/Alzheimer's/Parkinsons/ALS or Lou Gehrig’s/ diseases known as Borrelia burgdorferi the Lyme Disease spirochete)......
    This thread link
    Borrelia burgdorferi
    is very educating/alarming on these findings
    Watch the "Under Our Skin"Documentary on the OP..,
    It will definitely change the way you think about your sickness and "probable" incompetence of main stream medicine, for sure.......


    now'

    IMO:

    Main stream medicine is incompetent when the symptoms are rare/expensive/ or Insurance company dictated,So the Doctor will order very inexpensive COMMON blood tests/test/procedures that only uncover common sickness,........This goes for most main stream "specialists" as well..

    Therefore they quickly dismiss you as having a mental illness as the cause or just think you're just a worry wart or a nut job who can make yourself visibly ill just by thinking that there is something very wrong with your health.

    Example:

    Doctor:

    Mr. Tired of being sick..
    I understand that you're concerned about your heart rate rising as high as 166 BPM with minimal exertion such as taking a shower but this is normal for YOU
    Me:
    What?
    Doctor:
    Learn to control your anxiety,start exercising,and i'm SURE you will be just fine in a few weeks..
    Me:
    You are effin joking right?
    Doctor:
    No
    Me:
    Sigh, Then walk out of office with head down with no follow up examinations from said doctor.
    Go home go to bed for a couple of days from "doctor induced depression"..

    PCP/doctors can sleep good at night when they can dismiss the patient as a nothing we can do for you type of philosophy..
    I'm not a doctor by any means but I'm well versed/educated/experienced on this issue and rare diseases..
    like mine....

    Sadly, only because you the patient are FORCED to be your own PCP/Doc. when it comes to getting REAL help when dealing with main stream medicine
    Not by choice though!

    Family doctors/Specialists quickly get rid of/dismiss complicated patients just for the FACT of complexity.(I'm on my fourth pcp in less than one year!)so I'm very experienced/educated to make this accusation....

    Family doctors surely do not want to read 2 to 4 specialty examinations per month..

    And they damn surely do not want to change medications or dose every couple of months..

    And they are super sure that they do not want to keep ordering lab tests or send you to specialist or fill out timely Prior Authorizations just to PROVE to the insurance companies that you need the damn medication and the above said tests and procedures...

    All of the above requires all doctors to do way above average work especially Prior Authorizations..

    Doctors would rather give you the wrong medicine then fill out Prior Authorization forms..
    Trust me I have experienced this many times...

    In today's medicine, doctors are forced to work for insurance companies, not YOU or I or any patient who will drive costs up more than average, for that matter...


    PS
    Hope I did not sadden you..
    AND
    I wish you well on your journey to well being/recovery:)

    .
    heapsreal likes this.
  10. Soundthealarm21

    Soundthealarm21 Senior Member

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    Dallas, TX
    Burning sensation could definitely be related to mold.
  11. DeGenesis

    DeGenesis Senior Member

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    Lots of people are having trouble with the screens of the last few years.

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