Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Norway's Directorate of Health Apologises for Treatment of ME Patients

Discussion in 'Rituximab: News and Research' started by Min, Oct 22, 2011.

  1. Smygen

    Smygen Not so serious ;)

    I think it helps us alot, since it was cancer doc's that found this out
    They were treating a woman with both cancer and me for her cancer, and all of her me issues went away. And she kept chasing them, wanting more of the meds, after her cancer was gone.
    Then they tried with her and another one, with me. and they got the same result for both of them. After that, they started the trial

    Now, they are testing this on 4 bedridden with me. So for cancer doc's to do this, it has to be big !!!

    And, if i remember correctly from the "Invest in me-dvd"....... It works best on persons with elevated CD20 (something with the b-cells)
  2. Mya Symons

    Mya Symons Mya Symons

    This makes me proud that I am part Scandinavian. So how long until the U.S. National Institute of Health apologizes?

    Is this the same medication they are using now to treat rheumatoid arthritis also. So do they have any idea what immune cells we are having trouble with? Is it the immune cells within the spinal cord (glial cells and in particular microglia)?

    Does this have anything to do with blood tests coming back with elevated B-cell counts and low T-cells? Is it the B-cells that are overactive?
  3. Smygen

    Smygen Not so serious ;)

    They are quite clear about that they don't know much about why we improve. But because we do, and the way we do it, they belive (they don't know) that me is an auto immune illness.
    I did see some other measurements done (several other CD's) in the patients. But i don't remember other than the CD20 levels (that might be the casing of the b-cells, but not quite sure) , since that was what they talked about, and had graphs of.
  4. Nielk


    Why is this so much different than Ampligen? Ampligen I believe had a 30% success rate and those people REALLY got all better. It's true that some, after a while, have to go back on it but I believe that with this new medicine the affect didn't stick beyond the study period?
  5. Dreambirdie

    Dreambirdie work in progress

    N. California

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