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Nominations to fill empty CFSAC seat(s)

Discussion in 'Action Alerts and Advocacy' started by Andrew, Sep 30, 2013.

  1. Andrew

    Andrew Senior Member

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    I got this via email. Anyone know about this?

    From: "OS OPHS CFSAC (HHS/OPHS)" <CFSAC@HHS.GOV>Subject: Requesting Nominations for CFSAC Members
    The Office of the Assistant Secretary for Health (OASH), within the Department of Health and
    Human Services (HHS), is seeking nominations of qualified candidates to be considered for
    appointment as a member of the Chronic Fatigue Syndrome Advisory Committee (CFSAC). CFSAC
    provides advice and recommendations to the Secretary of HHS, through the Assistant Secretary for
    Health (ASH), on a broad range of issues and topics related to myalgic encephalomyelitis/chronic
    fatigue syndrome (ME/CFS). The appointments of several Committee members are scheduled to end
    during the 2014 calendar year. Nominations of qualified candidates are being sought to fill the
    positions that are scheduled to be vacated. The Committee composition consists of seven scientists
    with demonstrated expertise in biomedical research applicable to ME/CFS, four individuals with
    demonstrated expertise in health care delivery, private health care services or insurers, or voluntary
    organizations concerned with the problems of individuals living with ME/CFS. The vacant positions
    cover all of these categories. To qualify for consideration of appointment to the Committee, an
    individual must possess demonstrated experience and knowledge in the designated fields or
    disciplines, as well as expert knowledge of the broad issues and topics pertinent to ME/CFS.
    Individuals selected for appointment to the Committee will serve as voting members and can be
    invited to serve terms of up to four years. As Special Government Employees, committee members
    receive a stipend for attending Committee meetings. Committee members also are authorized to
    receive per diem and reimbursement for travel expenses incurred for conducting Committee business.
    Nomination materials should be typewritten, 12-point type, and double-spaced. If mailed, please
    submit original documents. The nomination materials should be submitted (postmarked or received)
    no later than 5:00p.m. ET on the date specified under DATES. The following information must be part
    of the nomination package submitted for each individual being nominated: (1) a letter of nomination
    that clearly states the name and affiliation of the nominee, the basis for the nomination (i.e., specific
    attributes which qualify the nominee for service in this capacity), and a statement that the nominee is
    willing to serve as a member of the Committee; (2) the nominator's name, address, and daytime
    telephone number, and the home and/or work address, telephone number, and e-mail address of the
    individual being nominated; and (3) a current copy of the nominee's r e s ume o r curriculum vitae.
    Federal employees should not be nominated for consideration of appointment to this Committee. An
    individual may self-nominate.
    The Department makes every effort to ensure that the membership of Federal advisory committees is
    fairly balanced in terms of points of view represented and the committee's function. Every effort is
    made to ensure that a broad representation of geographic areas, females, ethnic and minority groups,
    and people with disabilities are given consideration for membership on Federal advisory committees.
    Appointment to this Committee shall be made without discrimination on the basis of age, race,
    ethnicity, gender, sexual orientation, disability, and cultural, religious, or socioeconomic status.
    Nominations must state that the nominee is willing to serve as a member of CFSAC and appears to
    have no conflict of interest that would preclude membership. Potential candidates are required to
    provide detailed information concerning such matters as financial holdings, consultancies, and research
    grants or contracts for an ethics analysis to be conducted to identify potential conflicts of interest.
    ELECTRONIC SUBMISSIONS: Nomination materials, including attachments, may be
    submitted electronically to cfsac@hhs.gov. Telephone and facsimile submissions cannot be
    accepted.
    DATES: Applications for individuals to be considered for appointment to the Committee must be
    received no later than 5 p.m. ET on October 28, 2013 at the address listed below.
    ADDRESSES: All nominations should be mailed or delivered to Martha Duncan Bond, Alternate
    Designated Federal Officer, Chronic Fatigue Syndrome Advisory Committee, Office on Women's
    Health, Office of the Assistant Secretary for Health, Department of Health and Human Services, 200
    Independence Avenue, SW, Room 719E, Washington, DC 20201. Nomination materials, including
    attachments, may be submitted electronically to cfsac@hhs.gov.
    FOR FURTHER INFORMATION CONTACT: Martha Duncan Bond, Alternate Designated
    Federal Officer, Chronic Fatigue Syndrome Advisory Committee, Office on Women's Health, Office
    of the Assistant Secretary for Health, Department of Health and Human Services, 200 Independence
    Ave., SW, Room 719E, Washington, DC 20201. Inquiries may also be made to cfsac@hhs. gov.
    SUPPLEMENTARY INFORMATION: CFSAC was established on September 5, 2002. The
    purpose of the CFSAC is to provide advice and recommendations to the Secretary ofHHS, through the
    ASH, on issues related to ME/CFS. CFSAC advises and makes recommendations on a broad range of
    topics including: (1) the current state of knowledge and research; the relevant gaps in knowledge and
    research about the epidemiology, etiologies, biomarkers, and risk factors relating to ME/CFS; and
    potential opportunities in these areas; (2) impact and implications of current and proposed diagnostic
    and treatment methods for ME/CFS; (3) development and implementation of programs to inform the
    public, health care professionals, and the biomedical, academic, and research communities about
    ME/CFS advances; and (4) strategies to improve the quality of life of ME/CFS patients. Management
    and support services for Committee activities are provided by staff from the Office on Women's Health,
    which is a program office within the OASH. The CFSAC charter is available at
    http://www.hhs.gov/advcomcfs/charter/index.html.
     
  2. Denise

    Denise Senior Member

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    There is currently one vacancy on the committee.

    Between May and July of next year, five additional terms end. We do not know how they plan to fill the current vacancy but it could be filled from among those who were nominated in 2011 (I believe).

    The CFSAC ListServ email mentions that the upcoming vacancies are in all of the categories.
    "The Committee composition consists of seven scientists with demonstrated expertise in biomedical research applicable to ME/CFS, four individuals with demonstrated expertise in health care delivery, private health care services or insurers, or voluntary organizations concerned with the problems of individuals living with ME/CFS. The vacant positions cover all of these categories."

    So, we need to find qualified/able people who are willing to serve on the committee and get nominations in.
     
  3. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    I remember we pushed for Joan Grobstein last time. Anyone know how to contact her or if she is willing now. Maybe Lily Chu or Jennie Spotila, etc.

    Anyone willing to take on the mantle of contacting experts to see if they are willing to serve? (I am not able to take this on now). I think we could all agree on a good list of great candidates, but the crucial question is are they willing and able to serve at present.
     
    WillowJ and Nielk like this.
  4. jspotila

    jspotila Senior Member

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    I am working with some other advocates to identify a list of good nominees and reach out to them to gauge their interest. If people have ideas, please post them here or email me in the next few days.

    For a variety of reasons, I cannot consider serving on the CFSAC myself. And seriously, Justin, they would be CRAZY to put me on there! o_O
     
    SOC, WillowJ, readyforlife and 3 others like this.
  5. Sasha

    Sasha Fine, thank you

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    Pity - you'd be great!
     
    SOC, jspotila and justinreilly like this.
  6. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Great, thanks for handling this! They would be crazy to put you on there, since you'd get things done! : )
     
    jspotila likes this.
  7. WillowJ

    WillowJ Senior Member

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    bump
     
    jspotila likes this.
  8. jspotila

    jspotila Senior Member

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    Thank you for bumping this! I worry that in the furor over the IOM, we might lose sight that this deadline is less than two weeks away.
     
    justinreilly and WillowJ like this.
  9. jspotila

    jspotila Senior Member

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    Bumping this up again. I confirmed with CFSAC yesterday that the October 28th deadline stands, despite the shut down. If you want to submit nominations, you have just over a week to do so.
     
  10. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    jspotila
    Jennie, if you are able, it would be great if your group could post the list of your nominations when it's done so we can get behind it as soon before the deadline as possible.
     
  11. Nielk

    Nielk

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  12. jspotila

    jspotila Senior Member

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    I have nominated Mary Dimmock. I am awaiting confirmation on several additional nominations from other sources. I'll update as each is confirmed.
     
    Nielk, justinreilly and Bob like this.
  13. jspotila

    jspotila Senior Member

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    Donna Pearson has been nominated by Massachusetts CFIDS/ME & FM Association.
     
    Nielk likes this.
  14. jspotila

    jspotila Senior Member

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    Joe Landson has been nominated by Denise Lopez-Majano.
     
    WillowJ likes this.
  15. Nielk

    Nielk

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    I just got this e0mail from CFSAC listserv:

    We are pleased to announce that Secretary Sebelius has appointed a new member of CFSAC. Gary Kaplan, D.O., is the medical director of the Kaplan Center for Integrative Medicine in McLean, Va. Dr. Kaplan is board certified in family medicine, pain medicine, and medical acupuncture. He has more than 25 years experience practicing family medicine. Dr. Kaplan also practices neuromusculoskeletal medicine and osteopathic manipulative medicine and is a pain management specialist.
     
  16. jspotila

    jspotila Senior Member

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    Dr. Derek Enlander has been nominated by Gabby Klein, joined by other patients.
     
    WillowJ likes this.
  17. jspotila

    jspotila Senior Member

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    I interviewed Dr. Kaplan today, and will post a summary as soon as I can write it up (which won't be today, for certain).
     
    leela, beaker, Valentijn and 3 others like this.
  18. Nielk

    Nielk

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    If you would like to show your support for any or all the nominees above, you can send your e-mail to cfsac@hhs.gov
    att: Martha Duncan Bond
     
    beaker, WillowJ and jspotila like this.
  19. jspotila

    jspotila Senior Member

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    Yes! I encourage everyone to send emails in support of candidates nominated by others!
     
    beaker likes this.
  20. jspotila

    jspotila Senior Member

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    Dr. Leonard Jason has been nominated by Dr. Faith Newton.
     
    beaker and WillowJ like this.

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