Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

No XMRV found in spinal fluid

Discussion in 'XMRV Research and Replication Studies' started by ixchelkali, Apr 5, 2011.

  1. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
  2. Esther12

    Esther12 Senior Member

    Messages:
    8,258
    Likes:
    26,523
  3. Wayne

    Wayne Senior Member

    Messages:
    2,672
    Likes:
    2,436
    Ashland, Oregon
    Thanks ixchelkalki for posting this. I was surprised they didn't find any other viruses:

    I thought it was a good article; I liked these comments:

    I thought the following at the beginning of the article was a little disconcerting:

    Sense of weariness??? I wish that was all I had!!! [​IMG]
     
  4. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
    Yeah, I pretty much hated that line, too. It's like saying "Leukemia, a disease marked by symptoms that include swollen glands and tiredness," or "Myocardial infarction, which can cause shortness of breath and general malaise."
     
  5. Dorothy

    Dorothy

    Messages:
    49
    Likes:
    0
    That "sense of weariness" bothered me as well, in fact that's got to be one of the worst descriptions I've seen yet (not counting the psych stuff). Weariness is what I USED to feel decades ago when I mowed our lawn in 90 degree Texas heat and then came inside and made dinner and cleaned the kitchen. What I feel NOW is pretty much hellish. I'll take weary (as well as Texas heat) any day.
     
  6. Daffodil

    Daffodil Senior Member

    Messages:
    4,806
    Likes:
    4,426
    when they say they didnt find any other viruses, do they mean new ones, or even the herpes ones? cuz if they didnt even see HHV6 in any of the samples, i have to wonder about the study...
     
  7. maryb

    maryb iherb code TAK122

    Messages:
    3,481
    Likes:
    3,044
    UK
    Spot on Daffodil, most of us have one or another or even all of the herpes viruses, not a study to take seriously I don't think based on that fact alone never mind anythng else.
     
  8. Daffodil

    Daffodil Senior Member

    Messages:
    4,806
    Likes:
    4,426
    yea but so many negative studies now....i am starting to really worry about the xmrv theory.. i know its a retrovirus though....but which one!?

    i know dr. mikovits has found XMRV in spinal fluid..she told me long ago
     
  9. Ecoclimber

    Ecoclimber Senior Member

    Messages:
    980
    Likes:
    2,402
    Hold on Folks, to the best of my knowledge this abstract shouldn't have been released. There is more to it than meets the eye. Don't get too upset about it until I check my sources!
     
  10. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
    Thanks, Eco. The article says "Embargo expired: 4/5/2011 5:00 PM EDT." I look forward to hearing your backstory.
     
  11. Ecoclimber

    Ecoclimber Senior Member

    Messages:
    980
    Likes:
    2,402
    This is the most recent information:
    The article and the forum thread alluded to above, is about an earlier study. I just got off the horn with Dr. Tao Liu, one of the authors of the study below.

    http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0017287



    There is additional research in the pipeline on this study. I can't be anymore specific than that, sorry. So the study and the forum thread mentioned in the above postings are from an earlier research study. So you can chill out for now. :)
    http://www.newswise.com/articles/chr...nervous-system
    http://forums.phoenixrising.me/showt...-other-viruses

    I haven't been monitoring the forum that much. It sort of freaked me out on the posting of this thread.

    Eco
     
  12. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
    Eco, I understand you can't speak about an unpublished study, and I don't want you to. But I don't understand what you ARE saying (sorry, I'm confused :confused: ).

    The PLoS ONE study you linked to was the CSF protein study. They didn't talk about looking for viruses at all in that one. The news story is about another CSF study, also done by Schutzer & Natelson (and presumably Liu), published in the Annals of Neurology.

    Is the Annals of Neurology one still embargoed? Or is there yet another study in the pipeline?

    And is the Annals of Neurology the one that the earlier thread was about? The one that disappeared?

    I'm getting very confused.
     
  13. Ecoclimber

    Ecoclimber Senior Member

    Messages:
    980
    Likes:
    2,402
    Sorry for the confusion. Yes, I have to maintain strict confidentiality on this. There are additional research studies being conducted by some of the authors of the original PLoS ONE study involving xmrv as well, that has not been published to date. They were not party to the study mentioned here: http://www.newswise.com/articles/chr...nervous-system and the finding or conclusion that no xmrv was found in the spinal fluid in reference to the title of this thread. The earlier thread was about the research study published in the Annal of Neurology that appeared and disappeared. This is a totally different research project and is not the one mentioned in the Annal of Neurology.

    I can't really say anymore than than the fact that there is a lot of ongoing research being conducted behind the scenes among a lot of scientists some known, others unknown even though things look as if they are not. It takes awhile for these matters to get resolved. There are twists and turns to every research study as in the case of Dr. Alter, for an example. I hope this clarifies any confusion.
     
  14. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
    I understand that, and I'm perfectly willing to wait for the studies to get published.

    So maybe my confusion is with the news story, because it specifically says "Schutzer and colleagues, in an article published online by Annals of Neurology...targeted spinal fluid based on the belief that if there is a neurological component to CFS as the symptoms suggest, then spinal fluid might contain a relevant pathogen such as a virus that is associated with the syndrome."

    And it evens quotes Schutzer:Spinal fluid is a liquid window to the brain, said Schutzer. It is an important area of the body to examine when there is abnormal central nervous system function and an infectious or immunologic cause is suspected.

    So it seems apparent that the article wasn't talking about the PLoS ONE proteins in the CSF study.

    I'm not asking you to clarify what's going on with this news article, Eco, in any way that compromises confidentiality. You can leave us to speculate until it shows up in the Annals of Neurology. I'm just saying that the article says it's the same group of researchers, but a different study than the PLoS one.
     
  15. Ecoclimber

    Ecoclimber Senior Member

    Messages:
    980
    Likes:
    2,402
    ixchelkai if you look at the authors on each of the studies, not all of them that were on the first study, PLoS one, are listed on the second study.

    Eco

     
  16. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
    Oh. I get it. Sorry to be dense. Maybe it's brain fog. Or maybe I was just confused. :D
     
  17. Esther12

    Esther12 Senior Member

    Messages:
    8,258
    Likes:
    26,523
    Thanks Ecoclimber - I think I prompted a lot of this confusion by linking the two studies without checking the author list.

    Sorry all!
     

See more popular forum discussions.

Share This Page