1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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No one REALLY gets it

Discussion in 'Lifestyle Management' started by Nielk, Apr 22, 2011.

  1. icalla

    icalla

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    I know exactly what you mean!

    I spent my whole birthday in bed because I decided to let my family take me out for breakfast, after a very busy (for my standards) weekend. It was too much. Ah well. Again, though, they did it for the right reasons, and I did enjoy it. I just paid for it, that's all. I'm back in the groove now, so it's over with, but I'm so glad that they support me enough to keep trying.

    Graham, I also appreciate your input - it helps me to hear your voice, and see this from my parents' point of view. They are my main support. They really do try hard, but they can't possibly understand. I think my son actually gets it better than they do :) Something about just taking things as they are that children do so naturally...

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