Get PACE removed from clinical guidelines – sign the petition!
Sasha invites you to sign a new petition to the HHS to protect patients against the PACE trial, CBT and GET ...
Discuss the article on the Forums.

No Major Research Hospitals interested in XMRV?!?!

Discussion in 'XMRV Testing, Treatment and Transmission' started by TheMoonIsBlue, Sep 24, 2010.

  1. TheMoonIsBlue

    TheMoonIsBlue Senior Member

    Hey Glen,
    Thanks for the tip! I think emailing researchers, as opposed to doctors who already have a very established and probably busy practice (and probably aren't very concerned with CFS in general) is a great idea.

    I'm not trying to find any doctor at this point for treatment or anything, but if even one researcher becomes interested in XMRV, who knows what doors it will open in the future? I know XMRV is still far from proven to be the cause of CFS, but if more viral/immunology researchers became interested simply in viral activity and immune system problems in CFS patients, I would consider that atleast a small mission accomplished for our desperate community!
  2. Timaca

    Timaca Senior Member

    Susan~ I was initially invited to be in the study, but then the criteria changed, and I no longer qualified.

    Best, Timaca

See more popular forum discussions.

Share This Page