1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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NJ Woman Felled by 'Devastating Disease Doctors Have Never Heard of'

Discussion in 'General ME/CFS News' started by Ember, Oct 31, 2013.

  1. Ember

    Ember Senior Member

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    By SUSAN DONALDSON JAMES
    via Good Morning America
    Oct. 31, 2013

    "'I hope to touch people and in doing so to completely change the perception that the wider world has of this illness,' [Jennifer Brea] said of her documentary project. 'We are invisible and people don't understand how severe and life-altering this is. If they knew it, we'd get the social support we need.'"
    Read more...
     
    beaker, aimossy, Bob and 6 others like this.
  2. JohnnyD

    JohnnyD Senior Member

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    It's great to see this coverage. Jennifer Brea is a compelling leader. Super smart, articulate, down to earth and very attractive. I just hope her illness allows her to continue and that she does not overdo it.
     
    beaker, leela, Iquitos and 4 others like this.
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    This segment really got some notice. I had messages from many friends today who had seen it--non-patient friends! :)

    Sushi
     
    Wendi C, beaker, aimossy and 8 others like this.
  4. Ember

    Ember Senior Member

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    As Jennie Spotila posts in Go Big or Go Home, “We’ve longed for and dreamed of widespread public attention to the realities of having ME/CFS. Canary In A Coal Mine could deliver.”
     
    beaker and PennyIA like this.
  5. Nielk

    Nielk

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    Queens, NY
  6. Firestormm

    Firestormm Guest

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    Cornwall England
    ABC provide the video here. It's different to the Trailer I posted in the Phoenix article here I think. Shows more information. Rather good. Must be additional footage :)
     
    aimossy likes this.
  7. Ember

    Ember Senior Member

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    Nielk likes this.
  8. Sparrowhawk

    Sparrowhawk Senior Member

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    West Coast USA

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