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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I have been tempted to try Nimodipine several times, but I live alone, have two cats and my doctor is about 3 mikes away. I have lost touch with almost everyone while trying to live with this illness. I can't afford to be that ill!
But it is so tempting. And I have high blood pressure, so it might not have the bad effects it has on some people.
@Dechi Fascinating results. Do you happened to know which CFS/ME subgroup you belong to? (Infection or Autoimmune) is your CFS/ME sudden onset or gradual onset?
@hamsterman I have proof of infection by an enterovirus.
As a follow-up, I have to admit I have been regressing in the last year. I do believe nimotop is still helping me, but unfortunately the illness is progressing. It helps me sleep and function a little better still, but not as much as I thought in the beginning. Also, since it's very expensive, I am cutting down as much as I can. Right now I am taking a small dose in the morning only. Since I am worse in winter, most probably I will have to increase my dose in december or so.