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NIH XMRV Study Update.

Discussion in 'XMRV Research and Replication Studies' started by VillageLife, Jun 4, 2012.

  1. VillageLife

    VillageLife Senior Member

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    Tweets from: @CII722
    The Center for Infection & Immunity is dedicated to pathogen surveillance & grasping how gene-environment-timing interactions contribute to health & disease.
    -----------------------------

    @CII722: @DeBortgjemte @JAScarb @MEAssociation The XMRV study will NOT be published on June 30. Rumors associated with this release date are false.

    @CII722: @DeBortgjemte @JAScarb @MEAssociation We have begun composing the manuscript/compiling the data. Follow @CII722 for updates. Cheers!
  2. VillageLife

    VillageLife Senior Member

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    Just seen more tweets from @CII722

    Question from: @MyalgicEncephal: Was the original data for publication of the NIH study the 30th June? Why has it been pushed back?
    #mecfs #xmrv #MRV #virology #HHS


    reply from: @CII722: June 30th was an estimated date. It was never definitive.

    ----------

    Question from: @MyalgicEncephal: Was the original data for publication of the NIH study the 30th June? Why has it been pushed back?
    #mecfs #xmrv #MRV #virology #HHS


    Reply from: @CII722: Hopefully the publication, which will be released relatively soon, will answer ur questions. That's all we can say 4 now.
  3. August59

    August59 Daughters High School Graduation

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    End of August!!!
  4. Firestormm

    Firestormm Guest

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    2013 :)
    August59 likes this.
  5. VillageLife

    VillageLife Senior Member

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    Saw this on another forum from lipkin today. (hope they don't mind me posting)

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    We will release our findings as soon as possible; however, the work is still in progress. Please note that irrespective of the outcome we have a long term commitment to you and others in the community.
    ------
  6. barbc56

    barbc56 Senior Member

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    Thanks for the information VillageLife.

    Barb C.:>)
  7. Firestormm

    Firestormm Guest

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    Was reading this earlier this morrow from Jenny Spotila (Occupy CFS). Not sure I/you/anyone would agree with it (and not sure we'd want to critique her point of view here necessarily), but it seemed rather useful and linked to a previous post about Lipkin's Study penned last year which brought a lot of what's been said about this overdue study, together. It seemed there was quite a bit more revealed with regards to the preparation for the study than I remembered (and support expressed by e.g. Harvey Alter) at the NIH Conference (see link embedded in her post). Still, it remains inexplicably overdue. Perhaps it will be served up with a bow for in time for Xmas? :)
  8. Bob

    Bob

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    Interesting find, thanks Firestormm.

    (Just for info, I don't think that 'Jennie Spotila' is 'CFS Patient Advocate'.)
  9. Firestormm

    Firestormm Guest

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    Bob likes this.
  10. barbc56

    barbc56 Senior Member

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    Wow, Fire, you are burning brightly.:lol: This was very useful information. A long read as a paper would reference another paper which would take you to another paper, but cetainly worth it!!

    Thanks again.

    Barb C.:>)

    ETA The following statement, IMHO, says it all.

    http://www.occupycfs.com/2012/07/31/nih-funding-and-the-xmrv-effect/
  11. Firestormm

    Firestormm Guest

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    Lol. Yeah 'burning bright' that's me. Just took my morning meds for the second time not remembering I'd all ready taken them :oops: :aghhh:
  12. anciendaze

    anciendaze Senior Member

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    Firestorm, I strongly recommend you use a pill container which separates each day's dosage. I check mine a couple times every day because I can't remember whether or not I have already taken them. I also use my computer to check the date. There have been times when the pill box alone was not enough because I was mixed up about the date. I spend some minutes every morning on getting oriented in place and time.
    Firestormm likes this.
  13. barbc56

    barbc56 Senior Member

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    LOL, Firestone, I have done this so many times!! o_O

    To think before this DD, I rarely took an aspirin, would walk into a room and remember what I was suppose to do, knew right where my car keys were and absolutely never put my cell phone in the refrigerator!!

    Good idea anciendaze, now only if I can remember to fill up the pillbox. :thumbsup:

    All kidding aside, anyone know a pill container that has a lid that is child proof? I get paranoid when my grandkids are around so just keep the pills in the child proof bottle and then... well you can guess. I I did find a pillbox that's childproof but it's only for one day which is not as convient as I would like.

    Barb C.:>)
    Firestormm likes this.
  14. Firestormm

    Firestormm Guest

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    Thanks Ancient. It's been recommended to me before and like other things I have been stupidly ashamed to get one. I will though. Normally I'll have the pills in my hand and then a memory will flare reminding me I've done this before. But sometimes not. Like you I have 'pill-time' (like happy-hour but not) set up as reminders on my MSOffice on the computer - just have to have the damn thing on lol :)
  15. August59

    August59 Daughters High School Graduation

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    Didn't they add testing of spinal fluid relatively late in the study process. If that's the case I can imagine trying to round up those samples could have been a little time consuming and therefore could cause a significant delay in this study.

    I thought that they may have been able to get some samples from Natelson and his group or from Bariniuk. However, I do not think that was within the scope of the study and Natelson and Bariniuk are in the procees of doing their own studies on spinal fluid, so that wouldn't have worked anyway. Dr. Bariniuk's study should be close to being completed and hopefully will hear from it soon.
  16. Bob

    Bob

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    Lipkin's XMRV study only used blood. I think you might be thinking of Lipkin's CFI pathogen study, which Cort says might be including spinal fluid as one of the tissue types.
  17. August59

    August59 Daughters High School Graduation

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    I was referring to the CFI study.

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