Just got this email from NIH:
NIH said:Thank you for your comments in response to NIH’s Request for Information about research strategies for ME/CFS. Within the next few weeks, we will post your comments online (www.nih.gov/mecfs) to share with the community. Please note that certain personal information will be deleted from comments prior to posting.
Over the next few months, the Trans-NIH ME/CFS Working Group will review all of the responses and use your comments to help guide research strategies and initiatives to advance our knowledge of ME/CFS and eventually find a treatment for this devastating disease. Once the responses are reviewed, the Working Group will prepare a summary which will be posted online (www.nih.gov/mecfs).
Please check the NIH ME/CFS website (www.nih.gov/mecfs) for this information as well as updates of other ME/CFS research activities at the NIH.
Sincerely,
Marian Emr
Director, Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
on behalf of the Trans-NIH ME/CFS Working Group
marian.emr@nih.gov