A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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'NIH RFA’s! Money talks – what will this mean for Columbia CII’s ME/CFS research!?'

Discussion in 'General ME/CFS News' started by aimossy, Feb 27, 2017.

  1. aimossy

    aimossy Senior Member

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    Tuha, Lindberg, mango and 6 others like this.
  2. aimossy

    aimossy Senior Member

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    "Mini monster study update: As we speak the CII team are finishing the 4th and final assessment of their large amount of information and sample collection for the Monster study. This has been a HUGE undertaking and they have been successful with enrolment retainment – a major achievement! Thank you so much to all the study participants and donors – you all made this possible!"
     
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  3. justy

    justy Donate Advocate Demonstrate

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    Looks like some much needed funds could be available. Im always slightly confused by why they haven't raised more money yet from donations. this is what is says lower down on the page

    That doesn't seem like an awful lot to me. Also this post above has been up since this morning and no one has commented on it yet? This is good news surely?

    So why is there less interest in this study than in the work Ron Davies is doing? Both are important.
     
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  4. AndyPR

    AndyPR Senior Member

    I think one of the reasons is the level of connection that patients feel with Ron, Janet and Whitney, particularly as they are, compared to Ian Lipkin and Mady Hornig, so much more active on social media. I also think that patients like Rons, paraphrasing, "I'm going after the answers here and I don't have time to publish anything" style of research whereas CII seem to have a far more by the book, only publish something when sure about it approach. I appreciate both groups, agree that they are both valuable to the ME "cause" and I donate monthly to both the CII and to the OMF, but I can understand why people find it easier to connect to the OMF.
     
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  5. Solstice

    Solstice Senior Member

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    For me it's simply that it's much easier to donate to the OMF, i really rate the CII and really want to help out. But i don't possess a creditcard.
     
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  6. AndyPR

    AndyPR Senior Member

    Out of interest what options do the OMF offer that the CII doesn't?
     
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  7. Solstice

    Solstice Senior Member

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    Paypal is the one I use, what other options they offer that the CII doesn't i don't know.
     
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  8. AndyPR

    AndyPR Senior Member

    Also, don't forget that funds were also raised for a previous stage of the research.
    from "The Crunch" section here http://microbediscovery.org/microbial-discovery-immunity-study/
     
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  9. Tuha

    Tuha Senior Member

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    I also support both groups. I think it´s really pity that Lipkin group doesnt get more money - this group has huge potential. Hopefully they will attract NIH. We should think have to get more money for this group.
    There is already a big demand from many good research groups and the patients are simply not able to raise it. That´s why i was hoping that NIH will allocate more money for ME research.
     
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