Hi @JayS I understand your concerns about the use of the number of ME vs CFS patients, and the myriad of problems associated with the source of those statistics, and I understand that we don't want/need any more damaging psychosomatic studies published on ME/CFS, BUT when a member of congress sends a letter to the director of NIH requesting a $7 to 10 million Request For Applications (RFA) specifically for ME/CFS WE NEED TO join the bandwagon, and IF there is fallout we should deal with it if/when it occurs. If granted, this request would earmark a lot of money for requests for applications specifically for ME/CFS, and that would open the door to all our GOOD researchers who are begging for funding. We can NOT afford to stop taking every opportunity that floats by, even if it isn't packaged the way we would prefer. No, the person or people who wrote the letter likely would NOT think that government funding for physical illnesses can be and is sometimes spent on psychosomatic studies. Why would they if they are not in this chronic illness community? Additionally, anyone who is not personally involved in this illness or any other chronic condition would assume they should get accurate information from the CDC website, and wouldn't question the CDC reported numbers or information. These are things we have learned from our experience. Maybe there is a hidden opportunity here for you to write to Congresswoman Zoe Lofgren and/or her aide (Dr. Ben Gutman - email@example.com.). It seems he was instrumental in getting this letter out. Perhaps he has a personal connection, but doesn’t understand all the politics involved in our disease. Maybe you can request that they write an addendum to the letter explaining your concerns. Do whatever you can, but please don't do nothing. Your voice is far too important and your knowledge and experience must be shared with anyone willing to listen. Thanks JayS!