• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

NIH provides info pages on intramural study (new)

Sasha

Fine, thank you
Messages
17,863
Location
UK
Here it is:

http://mecfs.ctss.nih.gov/index.html

And they've even got a FAQs page (and I bet they really did get some frequently asked questions!):

http://mecfs.ctss.nih.gov/faq.html

I think these pages must be very recent.

Note that these appear to be info pages for both people who want to know about the study, and recruitment pages for those who might want to take part.

On the contacts page:

NIH said:
Click on this link to ask us anything about the study or your participation in it:
NINDS clearinghouse (braininfo@ninds.nih.gov)

Phone inquiries can be made to the Patient Recruitment Center service (1-800-411-1222; TTY: 1-866-411-1010).

It may take one to two months to respond to your inquiry once it has been received.