I just wanted to point out one other thing that Wallit, Gill, and the Other have not been exposed too the attrocity of severe or moderate severe ME as it stays almost hidden.
Dr Petterson, KDM, Goldstein, Klimas and a handful of others have seen it. But not many.
This Trio by no means i feel are true experts, true experts have been exposed to over 10,000 + patients which i can almost surely guarantee these individuals have not seen.
And I have to say it that even though it looks like ME, Smells like ME, and is duscussed about as ME...Doesnt mean its always me....there is no biomarker yet
Their are 300 or more autoimmune mediated neurological illnesses with symptom overlapp to ME....and many have a viral or bacterial onset as the trigger....as per Mayo Clinic and many Pubmed Articles....many will become bedbound prior to getting answers because they cant make it to the Mayo Clinic or another Expert specialist cause they are too sick, dont have insurance or dont have the finances.
I actually go half insane reading all the shit thats out their. I bet you many of us fit the bill for a ton of different rare autoimmune diseases...with know known cause...or cure...or marker....
The VO2 Max test should weed us out right away.....and hopefully NK cell function...and IL17...cd3 and 4...and who knows what else.
ME as disccussed many times is likley a group of subsets under the category of ME or is stages like in Cancer.
I think we should use our brains elsewhere and focus on planning and goal setting with our organizations.
Dr Petterson, KDM, Goldstein, Klimas and a handful of others have seen it. But not many.
This Trio by no means i feel are true experts, true experts have been exposed to over 10,000 + patients which i can almost surely guarantee these individuals have not seen.
And I have to say it that even though it looks like ME, Smells like ME, and is duscussed about as ME...Doesnt mean its always me....there is no biomarker yet
Their are 300 or more autoimmune mediated neurological illnesses with symptom overlapp to ME....and many have a viral or bacterial onset as the trigger....as per Mayo Clinic and many Pubmed Articles....many will become bedbound prior to getting answers because they cant make it to the Mayo Clinic or another Expert specialist cause they are too sick, dont have insurance or dont have the finances.
I actually go half insane reading all the shit thats out their. I bet you many of us fit the bill for a ton of different rare autoimmune diseases...with know known cause...or cure...or marker....
The VO2 Max test should weed us out right away.....and hopefully NK cell function...and IL17...cd3 and 4...and who knows what else.
ME as disccussed many times is likley a group of subsets under the category of ME or is stages like in Cancer.
I think we should use our brains elsewhere and focus on planning and goal setting with our organizations.