August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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NIH Participant Engagement and Health Equity Workshop

Discussion in 'Action Alerts and Advocacy' started by Kati, Jun 30, 2015.

  1. Kati

    Kati Patient in training

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    NIH is organizing a workshop on July 1st and 2nd which will be webcast on participant engagement and health equity as they relate to the proposed PMI (Precision Medicine Initiative) national research cohort.

    The workshop will focus on the design of an inclusive cohort, building and sustaining public trust, direct-from-participant data provision, and effective and active participant engagement characteristics of a national research cohort of one million or more volunteers.

    For those interested in health policy and moving the ME agenda higher up in the priority list it may be a good opportunity.

    Check it out here:
    http://www.nih.gov/precisionmedicine/workshop-20150701.htm
     
  2. Kati

    Kati Patient in training

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    The hashtag #PMINetwork is the one which will be used on Twitter. Adding it to your tweets will increase exposure to your comments.
     
    Snow Leopard likes this.
  3. Kati

    Kati Patient in training

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    Roy S likes this.

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