Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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NIH gets $2 billion boost in Senate spending bill - new funding for 2017

Discussion in 'Other Health News and Research' started by Bob, Jun 7, 2016.

  1. Bob

    Bob

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    NIH gets $2 billion boost in Senate spending bill
    Science Mag
    June 7th 2016
    http://www.sciencemag.org/news/2016/06/nih-gets-2-billion-boost-senate-spending-bill
    Read more:
    http://www.sciencemag.org/news/2016/06/nih-gets-2-billion-boost-senate-spending-bill
     
  2. Bob

    Bob

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    Some details...
    http://www.sciencemag.org/news/2016/06/nih-gets-2-billion-boost-senate-spending-bill
     
    Jennifer J and duncan like this.
  3. Bob

    Bob

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    http://www.appropriations.senate.go...7-labor-hhs-and-education-appropriations-bill
     
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  4. duncan

    duncan Senior Member

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    Less than $30 million combined for ME/CFS and Lyme, despite literally millions struggling with, or being disabled by, those diseases.

    How many pwME in the US? Oh, sorry, the US has no recognized pwME. How many CFSers? Over a million?

    Meanwhile, in the US alone, perhaps more than 60,000 new cases of late stage Lyme resistant to treatment - each and every year - are added to the chronically ill. So if Lyme has been spreading at an inclined rate in the US since the late 70's...I need my calculator.

    Obviously between the two diseases we are talking millions felled.

    Less than $30 million allocated.
     
  5. ebethc

    ebethc Senior Member

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    In related news....

    Sean Parker's Foundation just donated $250m for immunotherapy research & development to combat cancer. Sean Parker has serious immune & allergy problems in his family and has also funded allergy projects at UCSF.
    There HAS to be some traction in combating immune illnesses as well, right? I don't know why my body can't keep EBV at bay, or if it's related to the T lymphocytes mentioned in this brief summary, or if this research will lead to more understanding about NK cells (..and why I have so very few of them..) but it here's hoping.
    http://parker.org/initiatives/parker-ici

    ...and the Gates Foundation donated the lion's share of a $400m investment in microbiome research, which may be beneficial, too.
    https://www.washingtonpost.com/news...w-white-house-initiative-will-figure-out-how/

    Maybe the best strategy is to try to get added to big projects that are already super well funded & seem to be focused in very close approximation of CFS... I don't know enough about the politics of funding & research... Is it possible to write an open letter w a petition on Change.org, etc., to the Parker Foundation & Gates Foundations to make a small change to the scope?
     
    Last edited: Jun 7, 2016
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