halcyon
Senior Member
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I don't see this site mentioned often, but the NIH Genetic and Rare Diseases Information Center site on CFS is pretty terrible, notably the treatment section.
You can leave feedback using the link at the bottom of the page that says 'Suggest an Update'. I told them they should probably update this page to reflect the AHRQ addendum findings regarding the poor quality of the evidence for CBT/GET.
Treatment options for chronic fatigue syndrome (CFS) are limited.[3] Treatment is largely supportive and is focused on the specific symptoms present in each individual.[6] In most cases, symptoms of CFS lessen over time.[7]
Many therapies have been tried, but only cognitive behavioral therapy (CBT) and graded exercise therapy reportedly appear to produce meaningful benefit. CBT typically involves a series of one-hour sessions designed to alter beliefs and behaviors that might delay recovery.[7]
Graded exercise therapy can be beneficial because prolonged lack of exercise may worsen the symptoms of the condition and should be discouraged.[3][7] Gradual introduction of regular aerobic exercise, such as walking, swimming, cycling, or jogging, under close medical supervision may reduce fatigue and improve physical function. The goal is to have 30 minutes of light exercise five times a week. To avoid overexertion it is recommended to set a target heart rate range, generally <100 beats per minute. Graded exercise should always be supervised by a physical therapist or exercise therapist. In some studies, women with this condition were found to have low normal fitness on treadmill testing with no indication of heart or lung problems. Maximal testing did not result in worse fatigue or other symptoms.[7]
Because many people who have CFS are also depressed, treating the depression can make it easier to cope with the problems associated with CFS. Low doses of some antidepressants may help improve sleep and relieve pain.[6269]
A number of medications, special diets and vitamin supplements have been evaluated in individuals with CFS, but none have been proven effective.[6][7] Although there have been a number of viruses that were initially reported to cause CFS, additional studies have not supported this.[3] Trials of antiviral agents have been ineffective in relieving the symptoms of CFS.[6] Several clinical trials aiming to find effective treatment are currently ongoing.
You can leave feedback using the link at the bottom of the page that says 'Suggest an Update'. I told them they should probably update this page to reflect the AHRQ addendum findings regarding the poor quality of the evidence for CBT/GET.