Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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NIH announcement and ME/CFS voices and stories heard

Discussion in 'General ME/CFS News' started by Cureme94, Oct 30, 2015.

  1. Cureme94

    Cureme94

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    I happened to send NIH Director Collins another email Wednesday October 28th, and I received this email on Thursday October 29th morning: (to be read, but not copied or posted elsewhere): Yesterday's NIH announcement was a dramatic shift, and I thank all who have advocated for the ME/CFS patients, as I truly believe everyone's voices have truly been heard.

    Dear XXX XXXXXXX,

    Thanks for your note. I am touched and saddened by the poignant story you relate about your son. And I am familiar with many other similar stories of individuals stricken by this mysterious illness.

    Your note arrived in my inbox yesterday just as I was reviewing the final draft of a highly relevant press release that was posted a half hour ago – see http://www.nih.gov/news/health/oct2015/od-29.htm

    I am determined to see NIH ramp up the investment in finding the cause, and ultimately the cure. This will not be an easy road, of course. But many of us here are determined to try. We want to be the National Institutes of Hope for all of those with ME/CFS.

    With personal best wishes to you, your husband, and your son,

    Francis Collins
     
    leokitten, alkt, Johannawj and 33 others like this.
  2. Riley

    Riley Senior Member

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    Louisiana
    Wow!
     
    Effi, Bob, ghosalb and 3 others like this.
  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Wow, indeed. He sounds like a very compassionate man.
     
    ghosalb and Jennifer J like this.
  4. ghosalb

    ghosalb Senior Member

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    upstate NY
    looks like at last we are in good hands.....
     
  5. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
    :jaw-drop::thumbsup:
     
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  6. Bob

    Bob

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    England (south coast)
    I'm impressed that Collins sent such a personalised response. Thanks for sharing, @Cureme94
     
    Jennifer J, alkt, Valentijn and 6 others like this.
  7. Cureme94

    Cureme94

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    I hesitated and debated sharing, and then decided it was beneficial for all to understand this message that is coming from the top .
     
    Jennifer J, Valentijn, alkt and 4 others like this.
  8. Effi

    Effi Senior Member

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    I'm so glad you decided to share this message! every ray of hope counts. thanks!
     

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