Moderator note: This thread, to discuss preparations and advocacy efforts in relation to the NICE Guidelines Review (due in Aug 2013) was spun off from a discussion on a PACE Trial thread According to this page, a new group, NCGACC, will be reviewing the guidelines in Aug 2013 http://guidance.nice.org.uk/CG53 Contact here: http://www.ncgc.ac.uk/Contact/ About them: http://www.ncgc.ac.uk/About/ Methodology for the review: http://www.ncgc.ac.uk/Guidelines/Methodology/ I think there is an argument to simply dismiss the PACE findings saying the small movements clearly disprove their original behavoiural and deconditioning theories.We need to have justifications but not necessarily go into all the detail all the time. Then the emphasis should be on promoting other results such as Fluge and Mella, work on natural killer cells and Apligen as a demonstration that there are clear issues with the immune system and that these should form the basis of future treatment plans. The big question is who will be on the NICE guidelines committee since this will determine the outcome. Remember those shouting loudest about evidence based medician are those most willing to ignore evidence that doesn't fit their theory. Ideally NICE would be in a position where it will be too embarasing for them to dismiss all the new evidence as they know sucesses in other countrys will be noticed as will their failure to look at new evidence.