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NICE guideline: Information for stakeholders on the consultation process

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jul 10, 2017.

  1. charles shepherd

    charles shepherd Senior Member

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  2. charles shepherd

    charles shepherd Senior Member

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    Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management: Surveillance consultation

    The clinical guideline for CG53 Chronic fatigue syndrome/myalgic encephalomyelitis (or
    encephalopathy): diagnosis and management has been checked by NICE for the need for update.

    Registered stakeholders for the guideline are invited to comment on the provisional decision via this website.

    Organisations not registered as stakeholders are not able to comment, we recommend that you register as a stakeholder or you contact the registered stakeholder organisation that most closely represents your interests and pass your comments to them.

    Note that the provisional review decision presented here does not constitute NICE's formal decision on this guideline. The decision is provisional and may change after consultation.

    Consultation dates: 10 July 2017 (9am) to 21 July 2017 (5pm)

    Consultation documents:
    How to submit your comments:
    Please provide all responses to the review proposal document using the comments form (ensuring all relevant fields are completed, including your organisation’s full name) and forward this by email before 5pm on Friday 21 July 2017 to the following email address:

    Surveillance@nice.org.uk

    NICE is unable to accept:
    • Comments from non-registered organisations – if you wish your comments to be considered please register via the NICE website
    • Comments received after the consultation deadline (5pm, 21 July 2017)
    • Comments that are not on the correct form
    • More than one response per stakeholder organisation
    • Confidential information or other material that you would not wish to be made public
    • Personal medical information about yourself or another person from which your or the person’s identity could be ascertained.
    What will happen to your comments?
    • Comments from registered stakeholders and nominated expert reviewers ONLY will be sent to the review team at the end of the consultation. These will inform the final decision made by the NICE Guidance Executive.
    • No action will be taken upon receipt of personal, individual comments, comments from non-registered organisations and late comments.
    Anticipated review decision publication date: October 2017

    Further information:
     
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  3. Keela Too

    Keela Too Sally Burch

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    N.Ireland
    The questions ... what does No 3 refer to?
    Do you have any comments on areas excluded from the scope of the guideline?
     
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  4. Countrygirl

    Countrygirl Senior Member

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  5. charles shepherd

    charles shepherd Senior Member

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    These are the four very specific questions that NICE stakeholders are being asked to respond to:

    Overall response

    yes / no

    Comments

    Please insert each new comment in a new row

    Do you agree with the proposal not to update the guideline?



    Do you agree with the proposal to remove the guideline from the static list?



    Do you have any comments on areas excluded from the scope of the guideline?



    Do you have any comments on equalities issues?
     
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  6. Esther12

    Esther12 Senior Member

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    Is it just me, or does the comments form not open for people?
     
  7. Esther12

    Esther12 Senior Member

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  8. Esther12

    Esther12 Senior Member

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    I've signed that, but I think that it's a mistake to promote pacing and home visits for the severely disabled to NICE. There isn't good evidence of benefit for them, and if we're arguing for interventions with low quality evidence of benefit then we will get CBT and GET.
     
  9. slysaint

    slysaint Senior Member

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