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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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Nice article from Llewellyn King (talks about recent studies and CFS history)

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Jemal, Jun 3, 2011.

  1. Jemal

    Jemal Senior Member

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    Another nice article from Llewellyn King. Some random quotes:

    Very long article:

    http://www.realclearscience.com/art...fatigue_syndrome_is_misunderstood_106242.html
  2. Boule de feu

    Boule de feu Senior Member

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    Ottawa, Canada
    I love this part!

    "For most patients, CFS is a one-way ticket to hell. The affliction is acute and mostly incurable. Horrifically, it takes away even life's littlest pleasures.

    According to many interviews and hundreds of e-mails I have received since first covering the disease, sufferers are hit first with symptoms of what seems to be flu. Sometimes there is a short, deceptive remission -- sometimes two or three. Then the pattern emerges of collapse after every exertion, especially exercise. Finally, full onset occurs: There are no more normal days, only different degrees of weakness, pain and other symptoms. Doctors term the disease relapsing and remitting. That means you might have weeks, months or years of slightly better days, and then stretches -- often years, sometimes decades -- of almost total helplessness. It is goodbye to the life you have known; goodbye to work, to hobbies, to lovers and spouses, to everything short of hope."

    It says it all.
  3. Enid

    Enid Senior Member

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    Thanks jemal - a lovely positive understanding article (much needed at this time).
  4. Sasha

    Sasha Fine, thank you

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    It's a really superb article - we're very lucky to have this guy's interest. Please visit his page to give him the traffic and leave positive comments.

    I would like to leave a comment promoting supporting WPI in the Vivint contest and if it's in the first few posts it should get lots of attention but although I've signed up, the site is just hanging for me - I can't leave my comment.

    Can someone else please try in case the problem persists for me? I was going to give the link to Cort's article about Vivint, which is:

    http://forums.phoenixrising.me/show...h-II-The-1.25-million-Vivint-Facebook-Contest
  5. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    The comment process messed up for me too. This is probably the best article I've read on ME (other than by Hillary Johnson).
  6. Dreambirdie

    Dreambirdie work in progress

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    "ONE WAY TICKET TO HELL"... says it.

    So glad to read an article from someone who REALLY gets it. :victory:

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