Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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NHS Scotland recommends to diagnose ME with the Canadian Criteria and separate it fro

Discussion in 'General ME/CFS News' started by leela, Nov 15, 2011.

  1. leela

    leela Slow But Hopeful

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    Couchland, USA
  2. Sasha

    Sasha Fine, thank you

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    Wow! That's fantastic news, leela - thanks for posting. I hope that policy might spread from Scotland to the rest of the NHS in the UK. That really is the best piece of news I've seen coming out of the UK for ages. It has cheered me up no end!
     
  3. snowathlete

    snowathlete

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    quite a big change that. I guess it can only be good news really. Thanks for Posting Leela!
     
  4. leela

    leela Slow But Hopeful

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    I know, right? It's so nice to have a big piece of good news after all this, erm, crap.
     
  5. Morgaine

    Morgaine

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    Fantastic news, let's hope it spreads across the whole UK.
     
  6. leela

    leela Slow But Hopeful

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    Fingers crossed :victory:
     
  7. Andrew

    Andrew Senior Member

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    If that does manage to spread, then the NICE brigade with be obligated to do a differential diagnosis. They will have to exclude all CC-ME people from their reign of terror. Go Scotland!!!
     
  8. anne_likes_red

    anne_likes_red Senior Member

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    Yes! Leading from the top :)

    This is a very positive development.
     
  9. max

    max

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    1st place ............:victory:Go Norway:victory:
    2nd place ............:victory:Go Scotland:victory:

    who's next?
     
    ixchelkali and Wildcat like this.
  10. leela

    leela Slow But Hopeful

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    :victory:The World:victory:
     
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  11. allyb

    allyb Senior Member

    Scotland, it seems have always been ahead of the game on ME

    They have a Scottish Parliament cross Party Group on ME

    I read the Scottish Good practice Statement on ME-CFS 2010, which was formally endorsed by the Royal College of General practitioners (Scotland) and the Scottish Neuroscience Council!!!!
    And not British Psychiatrists and the Royal College of Psychiatry.
    It was a joy to read and I hoped they would take it forward.... and it seems they have.
    However I don't think we can just simply HOPE that the rest of the UK will follow, I don't believe it will.... without encouragement!!!
    I would urge every UK PR member to highlight this to their own MP. I have noticed from the number of views that UK petitions receive on this forum, that there is an understandable apathy.
    I have also read on many posts of late, the need to pull together; count me in, I see my MP on Saturday.
     
    justinreilly likes this.
  12. Sean

    Sean Senior Member

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    I love you, Scotland. :hug:
     
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  13. Sing

    Sing Senior Member

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    New England
    Norway, Scotland? Cooler heads will prevail! Come to think of it, we have a lot to be grateful for from Canada too, the CCC and now the ICC, spearheaded by Lydia Neilson at Mefmaction--Be proud, you Northerners!
     
  14. sensing progress

    sensing progress Senior Member

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    I have always felt like the various groups studying "CFS" are comparing apples and oranges. Some people with 'chronic fatigue' may be helped by CBT or GET, and that is what some groups study and why they may find positive results. It is all about the case definition. This is good news.
     
  15. kurt

    kurt Senior Member

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    That's great news, maybe someday the US CDC will follow suit. Instead of ME/CFS we would have ME, CFS, and ME+CFS... would be a much better world I think.
     
  16. taniaaust1

    taniaaust1

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    All I can say is Wow!!.. if they do do this.. Im sure some other countries in the world will follow as this will raise questions from all countries around the world.
     
  17. Enid

    Enid Senior Member

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    Thanks leela - great news - wake up the rest of the UK !
     
    Glynis Steele likes this.
  18. Ember

    Ember Senior Member

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    The ICC, spearheaded by Lydia...I don't think so!!:( But thanks for acknowledging Canada.:D
     
  19. "ALBA GU BRATH!"

    [​IMG]


    hehe ;)

    Amazing what can be achieved when your government isn't selling their arses, and the entire country, to the pharma and insurance corps etc, isn't it? :thumbsup:
     
    allyb and anne_likes_red like this.
  20. Wonko

    Wonko Senior Member

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    The other side.
    Before I move to scotland, what does this mean in terms of treatment options? presumably still CBT/GET as NICE dont approve anything else?

    Using "nicer" criteria is definately a step forward and it may help people in the future but what does it mean for someone in scotland diagnosed with ME today, or scottish pwME in general today?

    Or am I just being too negative?
     

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