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NHS MUS Page to be archived

Discussion in 'General ME/CFS Discussion' started by TeresaBCN, Sep 21, 2017.

  1. TeresaBCN

    TeresaBCN

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    Barcelona
    I wrote to complain about ME being covered on the NHS MUS Page.
    You can see the latest reply from them..very interesting if true...they say MUS page likely to be archived soon. I've asked for an explanation why and if it's to be replaced with something else.

    Will post the reply if and when I get It.
     

    Attached Files:

  2. TiredSam

    TiredSam The wise nematode hibernates

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    Heroes de Dracania?
     
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  3. GreyOwl

    GreyOwl Dx: strong belief system, avoidance, hypervigilant

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    "There is a possibility that Khaly drops two unique objects, the Dark Look of Khaly..."???
     
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  4. NelliePledge

    NelliePledge plodder

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    Err???????
     
  5. NelliePledge

    NelliePledge plodder

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    Nice one T lets hope it isnt just another renaming
     
  6. TeresaBCN

    TeresaBCN

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    Ooops! Wrong file haha. Try this one Screenshot_20170921-232617.png
     
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  7. mermaid

    mermaid Senior Member

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    @TeresaBCN thank you for writing to the NHS about this. I just looked at the NHS page here http://www.nhs.uk/conditions/medically-unexplained-symptoms/Pages/Somatisation.aspx

    I see this on the page 'Your GP will aim to rule out all the possible conditions that might be causing your symptoms. You may have a thorough physical examination and blood tests.' When I was diagnosed with ME/CFS many years ago, my GP did no blood tests on me. She sent me off to the CFS unit on my request, and despite seeing an immunologist who diagnosed me, no one there did any tests on me either. It was only many years later when I saw a private Dr that I began to have tests done at my request and began to see immunological abnormalities. (I had previously been diagnosed with underactive thyroid but no one linked that in with the CFS either, or the fact that my FT3 was low, and it was down to me that got chased up also).

    I have improved my functioning pretty well entirely by my own hands.....admittedly reducing stress has been one factor in reducing symptoms but not the only one by any means, and of course we know that the DWP are happy to increase the stress levels of everyone thus making their conditions worse.

    It's quite interesting to look at the Clinical Trials pages on there to see what they are following up - psychological of course as far as I can see and 5 in the UK, although one is trialling acupuncture to see if it helps. On that trial page it says this 'Medically unexplained symptoms are closely related to somatisation which are a set of any symptoms that have no organic explanation'. Surely that should say 'no KNOWN organic explanation'.
     
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  8. Dx Revision Watch

    Dx Revision Watch Owner of Dx Revision Watch

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    If it is the case that the editors of NHS Choices are considering archiving the MUS article because they intend to replace the current article with revised content or with a replacement term, the following may be potential replacement terms:

    Somatic symptom disorder (SSD):

    For the American Psychiatric Association's DSM-5, the DSM-IV Somatoform disorders were replaced by Somatic symptom disorder. SSD has specific criteria that are the intellectual property of the APA.

    The DSM-5 is not used in the UK as much as ICD-10 and not used much in primary care, which currently uses ICD-10 and Read CTV3 codes.


    Bodily distress disorder (BDD)
    :

    For the forthcoming ICD-11, which will eventually replace ICD-10, BDD (as defined by ICD-11) replaces the ICD-10 Somatoform disorders.

    The (undefined) term "Bodily distress disorder" was also added to the July 2017 release of the International Edition of SNOMED-CT.

    The term "BDD" will be incorporated into all the various country extensions for SNOMED CT, including the UK extension, when the next release is issued in October. BDD has already been added to the US SNOMED CT extension.


    Persistent Physical Symptoms (PPS)
    :

    This term is seen increasingly in English NHS service provision. It included "MUS" but PPS service provision also extends to include Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Fibromyalgia and in some services, "Functional neurological disorders (FND)".


    So it's possible that rather than remove the article on MUS altogether, NHS Choices may be intending to revise the article but use one of the terms above.


    See this thread for information on MUS, PPS etc within the UK NHS:

    http://forums.phoenixrising.me/inde...hs-primary-care-whats-happening-across-the-uk

    MUS, PPS services and integration into NHS primary care - what's happening across the UK?
     
    Last edited: Sep 22, 2017
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  9. mermaid

    mermaid Senior Member

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    I was going to press - Like - @Dx Revision Watch to your post, but I don't like it one bit.

    I remember there was another thread on this but thank you for the link and reminder.
     
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  10. NelliePledge

    NelliePledge plodder

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    they could just call it [insert latest bullsh!t name here] guidance then they wouldnt have to edit
     

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