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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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NHS CFS/ME Occupational Guidance for Healthcare Professionals

Discussion in 'Action Alerts and Advocacy' started by Marco, Jul 22, 2010.

  1. Marco

    Marco Old blackguard

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    Near Cognac, France
    There is little to commend this NHS document, but are the following excerpts fully consistent with the current NHS blanket policy of CBT/GET or the information provided to patients.

    http://www.nhsplus.nhs.uk/providers/images/library/files/guidelines/CFS_HC_professionals-leaflet.pdf


    On CBT

    It should also be noted that the research studies on CBT excluded those patients who were too ill to attend or to continue attending CBT sessions.

    CBT does not work well where the patient still shows signs of a current infection

    On GET

    Although some RCTs show evidence of improved functional capacity for work and reduced fatigue, some patients experience a significant deterioration in symptoms with this intervention.



    The following factors have been identified as predictors of poorer work outcomes in individuals with CFS/ME ............

    higher number of physical signs such as lymphadenopathy

    "Patients recovering (sic) from a viral illness (sic) should be advised to avoid both prolonged resting and over-exertion once the acute illness has passed. Inappropriate advice given to patients in the early stages of fatigue may adversely affect their long-term outcome

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