Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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NGO for Lyme - Need your support!

Discussion in 'Advocacy Projects' started by dadouv47, Feb 8, 2017.

  1. dadouv47

    dadouv47 Senior Member

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    Hello everyone,

    I have been working for a while with a new NGO that wants to get recognition for Lyme disease in Europe. The project started in Holland but we are now collaborating with many others organisations in Europe, like ''Time for Lyme'' in Belgium ( for those who went to Himmunitas to see KDM, they probably already saw some papers from them), and we are starting to collaborate with some French and German organisations as well. Our goal is to expand the most we can but for this we need your support!

    There are already some ''TV commercials'' that are going to be broadcasted on television in Holland, but our main goals right now are the challenge ''Make an S.O.S stop sign'' campaign and the production of a documentary with subtitles in english. The documentary will show the life of different lyme sufferer but there will be also some interviews with well-known specialists, such as Dr. Horowitz, Dr. Burrascano, Dr. Klinghardt and the boss of Arminlabs, Dr. Schwarzbach.

    https://www.lymeepidemie.nl/?lang=en is our site where u can find more informations and the link for the petition is here https://iladsvoorlyme.petities.nl/

    We really need your petition to make a voice towards the authorities, and if u can donate as well it will be important for us (we need funds to produce the documentary and campaigns claiming for recognition and real treatments! )

    16507760_10154993401483827_1710404508_n.jpg

    Thank you!
    David
     
    Last edited: Feb 8, 2017
  2. Helen

    Helen Senior Member

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    Hi David,

    Great initiative!

    Did you know that this year there will be an almost 100 % reliable Lyme test available? It was initiated by the EU, but Finnish´ researchers completed the project. It´s called Tickplex. A rumour said that Arminlabs will perform the test.
    http://www.tickplex.com/
     
    Last edited: Feb 8, 2017
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  3. dadouv47

    dadouv47 Senior Member

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    I knew that a more reliable new test ( or even some new tests ) is going to be available this year, but I didn't know it was from Finnish' researchers. Thanks for the link @Helen :) Could be something good to ask to Dr. Schwarzbach !
     
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  4. Theodore

    Theodore Senior Member

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    Very interesting David!

    I wasn't aware of the finish project Helen, that's huge! Do you know it will be available approximately?
     
  5. duncan

    duncan Senior Member

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    @Helen, do you have any idea of how this Finnish test works? - I cannot tell by a quick review of the website.

    @dadouv47, good luck with the NGO. I think it is a great idea.
     
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  6. dadouv47

    dadouv47 Senior Member

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    Thank you! It's not my idea but I'm trying to help as much as I can. I guess it's the only thing we can do. Keep waiting silently for help is not gonna work... :(:redface:
     
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  7. Helen

    Helen Senior Member

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    In March, they hope.
    I´ll PM you.
    @dadouv47 , Maybe you could get some information in the name of your new group from he Finnish researchers? Or from Arminlab?
     
    Last edited: Feb 9, 2017
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  8. Theodore

    Theodore Senior Member

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    Wow...That is fast! :)
     
  9. dadouv47

    dadouv47 Senior Member

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    Not sure I will be able to speak to them so fast but if I can, I will let you know of course :)
     
  10. Helen

    Helen Senior Member

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    I assume Arminlabs is eager to present the test as soon as it will be released so when they are ready for it you´ll surely get an interview :).

    I believe that this test will change the paradigm of Lyme treatment that often tells that 3-4 weeks of Doxyferm will cure any Lyme infection. With a reliable test it will be possible to evaluate the treatments, if they erradicated the bacterias or not.
     
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