Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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News story on Basketball student with CFS; reporter corrects name from cf

Discussion in 'General ME/CFS News' started by WillowJ, Jun 16, 2011.

  1. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    Kudos to Joe Rychnovsky for correcting the name from "chronic fatigue" to "Chronic Fatigue Syndrome"

    and best wishes to Kaitlin Rohrs, who has ME/CFS and Exertional Compartment Syndrome.

    Here's the link:
    http://www.youtube.com/watch?v=c6zfh6abbGs
     
  2. snowathlete

    snowathlete

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    This is interesting I think because for those who don't know, exertional compartment syndrome is an exercise related problem - usually the legs - where the sheath surrounding a muscle is not big enough (perhaps not stretchy enough too?) and so when you exercise and blood flows to your muscles, the muscle tissue expands but is restricted by the tight sheath. This results in a large increase in pressure.
    I was tested for this after leg injury on exercise and the pressure was over 100. Think it may have been 120 or something. It should be about 20, something like that.
    So, I had surgery. Testing after that showed that it had worked.

    Anyway, I was reading about DrNewton's work on blood pressure etc earlier and thought about this and wondered if there was some link. So interesting to see that someone else had the same thing as me and ME/CFS. I wonder if the two could be related somehow.
     
    ukxmrv likes this.
  3. snowathlete

    snowathlete

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    ok, for anyone interested here are the actual results from my records.
    deep posterior compartment, left leg. The test involves inserting a small device into the muscle of the calf and its then taped in place. The device is connected to a machine via a tube full of saline. Its not dreadful but its not fun either. About half way through when the pressure drops that is because i started limping running mainly on my other leg.

    pressure study.jpg

    I remember with one of the studies, perhaps on my other leg, that when the pressure got really
    high it actually pushed the device out of my leg despite the taping and fell on the floor. Immediately after this blood starting squirting out of my leg along with my heartbeat. If you have ever seen a gory film where someone lops someones head of arm off or whatever, and you get hte skirting blood from the stump - that actually is exactly what it is like. :eek:

    By the way, i would not reccomend the surgery it is pretty awful, even when healthy!
     
    Valentijn likes this.

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