News of replication of WPI XMRV study...

Discussion in 'XMRV Research and Replication Studies' started by Wildaisy, Nov 26, 2009.

  1. Cloud Guest

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    XMRV certainly could explain many things, including stress intolerance and Post Exertional Malaise
  2. Cloud Guest

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    Sometimes my earliest symptom when starting into a flare-up, is to begin voiding (pee) off more fluids than I had taken in over the prior several days. It's a lot and happens fast....sure sounds HPA to me
  3. Lynn Senior Member

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    tina hypothesis 2

    Hi Tina, I like your hypothesis.

    I am wondering if that is what is going on with me while I am taking Low Dose Naltrexone (LDN). I had the most amazing energy for the first two days. After those days I was back to my normal CFS energy for about a week and then felt terrible for another week.

    I then took a week off of the LDN and started again. I had one good day and felt awful with depression and high anxiety (very unusual for me) after that. I have been trying a very low dose every 4 days and am still feeling terrible. In fact I think this is the worst I have felt with this illness in the 13 years that I have had it.

    I wonder if the LDN is kicking up my immune system and I am paying for it. Also, I wonder if I will eventually be able to feel better on the LDN in I just wait out these negative effects?

    Lynn
  4. 2Long

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    Crazy thought here...


    Take an immunosuppressant with beneficial medications that over-stimulate the immune system.


    I know it goes against what we think is good but it might work under some circumstances. Of course, under the supervision of a skilled immunologist.

    Thoughts ?
  5. Cort Phoenix Rising Founder

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    Raleigh, NC
  6. oerganix Senior Member

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    duendeni

    Your description of what I, too, experience is excellent. I need to print it out and show it to the next person who asks me how it feels, when I am so weak and sick I can hardly think or speak.

    My one description of the heaviness of the fatigue, that some people have been able to grasp, is that it feels like the normal 1 gee of gravity here on Earth has changed to 3 Gs of gravity, or like I'm wearing magnetic boots and walking on an iron surface. I often stub my toes, thinking my feet are higher above the ground than they really are.

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