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News from WPI symposium: Name change to be proposed for XMRV

Discussion in 'XMRV Research and Replication Studies' started by richvank, Aug 19, 2010.

  1. Mark

    Mark Acting CEO

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    I've checked on google and CFSMEXMRVXANDHGRADHGRV is available, no hits - unlike HGRV which is already in use for several other purposes. So I vote CFSMEXMRVXANDHGRADHGRV.
  2. Wasbeer

    Wasbeer

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    What about Judy Flu? In stead of Yuppie Flu ofcourse :rolleyes:
  3. V99

    V99 *****

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    Why no X on the end?
  4. alex3619

    alex3619 Senior Member

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    Hi bullybeef, I have wondered about animal vectors before. If ticks, why not fleas and mosquitos? That would be an even better explanation, that many insects are vectors, and would bring it home to people that it can be more easily transmitted. It seems the more we discover, the more research we need! Bye, Alex

  5. julius

    julius Watchoo lookin' at?

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    Whatever the name is we can have a name of our own choosing if we like. Take ALS for example. That one has the official 'scientific' name ALS, but is most often referred to by it's 'common' name, Lou Gherig's disease.

    So we could have HGRD, but call it Mikovits' Disease. I'd be down with that.
  6. LJS

    LJS Insert Witty Comment Here

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    Lou Gehrig was a baseball player who came down with ALS. Mikovits is not sick so I do not think Mikovits' Disease fits well.
  7. leaves

    leaves Senior Member

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    Yeah so i dont know whether its an honor to have disease named after you??
  8. alex3619

    alex3619 Senior Member

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    Hi Dont discoverers get to name organisms? The name of the disease is open to debate, but I suspect that XRMV is now HGRV for good, unless the discovers change their mind. Bye, Alex
  9. LJS

    LJS Insert Witty Comment Here

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    Another note, Mikovits did not discover XMRV, she found it in CFS patients. She deserves a lot of credit but it does not really make sense to name it after her.
  10. Dr. Yes

    Dr. Yes Shame on You

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    Yeah, we have to bear in mind that causality has not been established yet, that certainly not everyone with ME/CFS is XMRV (or whatever) positive by current testing, and that potential co-causal agents/factors have not been investigated. Although XMRV/HGRV/blah blah blah-V was found in a high percentage of ME/CFS patients tested by one study (and presumably by at least one other that is about to be published), more work needs to be done to clarify the nature of this apparent association. Also, as Akrasia noted, how it might figure into ME/CFS outbreaks like the Tahoe one is a big question mark.
  11. Wonko

    Wonko Senior Member

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    I vote for HAD - not many things make me laugh out loud these days but that did
  12. bullybeef

    bullybeef Senior Member

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  13. julius

    julius Watchoo lookin' at?

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    There are tons of diseases named after the one who discovered or first described them. Asperger, Reynaud, Kaposi, ...on and on and on.

    Mikovits was the first to describe the connection between XMRV and CFS, so it would be totally appropriate.
  14. muffin

    muffin Senior Member

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    "This virus is a human, not mouse virus, and it is the first and so far only gamma-retrovirus known to infect people. Also, it is clearly not an "endogenous" retrovirus (one that is present in all genomes due to ancient infection."

    This sentence caught my attention. Not Endogenous, meaning NOT due to ancient infection? So does this mean this virus is new?

    Science people --- What does the above sentence mean please???
  15. alex3619

    alex3619 Senior Member

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    Name change not really a bombshell?

    Hi, the more I think about it, the more it seems the proposed new names are not that big a deal. What is important is the science that drove the change, and we are only guessing as to what that is. When it comes out, don't be surprised if we find there are many more than one or two bombshells here. HGRAD is an umbrella term, and they may already know there is a second (third, more?) gamma retrovirus involved, which might be why they are positioning this way. It may turn out that they are in the process of defining a whole new category of retroviral diseases, the encompass a spectrum - or the spectrum is actually caused by coinfections or genetics, and it is all one disease. Damn, this is all too interesting, I am definitely getting adrenal burnout but I dont want to stop getting new info either!

    Bye
    Alex
  16. LJS

    LJS Insert Witty Comment Here

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    Since Retroviruses intregrate themselves into the host DNA he is saying XMRV is not something that everyone has in there DNA from a long time ago, only select people are infected with it.
  17. pollycbr125

    pollycbr125 Senior Member

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    I agree My son had a wilms tumour which is named after Dr. Max Wilms, the German surgeon (1867–1918) who first described this kind of tumor. So as Judy found the connection to me/cfs I still think Mikovits Neuro Immune Disease ( shortened to Mikovits disease )
  18. Dr. Yes

    Dr. Yes Shame on You

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    Hey bullybeef,

    Reeves had nothing to do with the initial naming, actually, as it was an earlier CDC administrative decision. The CDC had the clout to give an official name to an as-yet "unidentified" disease; the problem is that they chose to ignore the history of ME research and apply the term CFS to the disease that was spreading in the US as if it was a previously undefined entity. I think they got away with it back then because ME was not that well-known (especially in the US), and because they initially claimed (along with Straus at the NIH) that the cause was likely EBV, then backed off and redefined the illness as a vague syndrome. At the time, very few were willing to challenge them, especially as they have much of the official responsibility for tracking epidemics in the US.

    Now, however, the situation is different; a great deal of research has been done under the name "CFS", a great deal of confusion has been created by its various definitions (two of which seems to suggest that viral etiology is exclusionary for CFS!), the disease 'entity' is popularly known, and the CDC itself is taking a lot of flak over naming it in the first place. This time, it will take more than the CDC alone to make a name change, if that becomes necessary; others will have a say.

    Wessely et al may have been able to modify UK policy on naming thanks to political pressure, but they couldn't alter the official ICD coding. (Not yet, anyway...) The reason they were even able to accomplish this is because of the common use of the term CFS and the CDC definitions in biomedical research.
  19. Martlet

    Martlet Senior Member

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    :tear:
    That is really, really good, Sunshine.
  20. V99

    V99 *****

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    LJS is right

    Endogenous means it is a part of the human genome, exogenous means it's not ment to be there. It is foreign.

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