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News from WPI symposium: Name change to be proposed for XMRV

Discussion in 'XMRV Research and Replication Studies' started by richvank, Aug 19, 2010.

  1. bullybeef

    bullybeef Senior Member

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    But whom backed their decision and sanctioned the change. Everyone else in the medical establishments around the world had to believe their theories to agree to them. Or did they not have a choice?

    Seems they have too much power. Who regulates the regulators?
     
  2. dschlindwein

    dschlindwein not according to plan

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    Maybe XMRV is still XMRV--the retrovirus associated with a virulent form of prostate cancer. Maybe what had been thought to be a different strain of XMRV, the strain that causes ME/CFS, is not simply a different strain of that same retrovirus but a different retrovirus which therefore needs its own name. Just speculating.
     
  3. Sunshine

    Sunshine Senior Member

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    Yes, or maybe the person with Lyme was already harbouring XMRV (HGRV) and the Lyme tick was the activation 'trigger'?

    Just as *maybe* puberty (androgen rise) + infectious agent (EBV,CMV, HHV-6) = XMRV play time = ME/CFS.

    We all need that immune insult to switch on XMRV basically, however we need to have XRMV anyway, which other than the
    Lyme senario of being bitten by a tick, only leaves:

    *Contagious - person to person sneezing etc.
    *Blood transfusion aqquired
    *Vaccine programme by government we all receive as babies/children/teens. (BCG).
    * 2nd generation XMRV. Mom was infected and passed it on via act of birth/breast milk, 'born' with XMRV (HGRV) which activates later, e.g via Lyme tick/stress/infectious agents.

    I'm interested in BCG contamination myself as something to do with XMRV (HGRV). Too many teenagers getting walloped who then mysteriously get ME/CFS.
    Maybe BCG vaccine helps activates XMRV, rather than being contaminated *with* XMRV (HGRV) of which the source remains a mystery.

    I read a while back there is something (literally) in a BCG vaccine that is related to XMRV (HGRV). I think it was NF-kappa-B activates via BCG vaccine, and Judy Mikovits mentioned NF-kappa-B is directly involved in XMRV so I thought. Hmm, that's interesting!

    Lyme disease or not, if we all have XMRV dormant, we need that trigger to turn it on. Probably many things like Lyme, hard exercise/cortisol/androgens, but still that doesn't explain how we got XMRV (HGRV) in our blood supply in the first place. I wonder if a certain UK psychiatrist employed by the UN and the Army might know?!!!
     
  4. V99

    V99 *****

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    Health authorities and Government. They chose to listen to that particular group of scientists for a reason. Money.
     
  5. George

    George waitin' fer rabbits

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    Naw, XMRV will become HGRV which makes sense. It's a Human Gamma Retrovirus. The question is what do you call the illnesses associated with it.? For instance you might call Prostate Cancer that is HGRV specific; "H derived Prostate Cancer", you might call ME/CFS; "Human Gamma Virus Neuro Immune Syndrom or HGVNIS", something along those lines. HGRAD has been proposed for those of us who fall under a "Human Gamma Retrovirus Associated Disease", But like Dr. Yes said that could encompass ME/CFS and Autisum and Lyme and Who knows what else. So each might end up with it's own name as well.

    SIV or Simian Infection Virus became HIV eventually after being called everthing from HTLV-III to LAC and a couple of others, I don't remember but the Japaneses had their own designation too. So the name change will be proposed but it may take a while for the International community to settle on who get's called what.

    The Media will have a bit to do with what it get's called in the end as well. Some illnesses end up being "called" after the people instrumental in bringing them to light. Personally have Mikovitz disease is fine with me. (grins)
     
  6. LJS

    LJS Insert Witty Comment Here

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    I have tested positive for Lyme and for XMRV. I have been on Lyme treatment for over two years on year of that was with IV antibitoics and have not improved much. I am wondering if XMRV is playing a roll or causing this. I can not wait for more data to come out.
     
  7. guest

    guest Guest

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    :D I had to look it up in the dictionary first!
     
  8. Greggory Blundell

    Greggory Blundell *****

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    LJS, I contracted Lyme twice in less than a year, and was treated with antibiotics for 30 days. I improved for a time, but have deteriorated ever since. Don't know if I am XMRV+, but my guess is that Chronic Lyme is just Lyme amplified by activated XMRV.
     
  9. Sunshine

    Sunshine Senior Member

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    Unless, XMRV (HGRV) really isn't transmitted out of the blood.

    It's very possible the cluster cases in Tahoe etc, the people who came down with ME/CFS already had XMRV (HGRV) but it wasn't activated before. This makes sense to me because the vast majority of ME/CFS people report an unspecific virus that all leaves people suddenly chronically ill.
     
  10. bullybeef

    bullybeef Senior Member

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    Hi Sunshine,

    Excuse my ignorance, but what is the BCG vaccine, do us Brits called it the MMR jab (measles, mumps, and rubella vaccine) because I wouldn't be surprised if that could 'wake up' XMRV/HGRV?

    BB
     
  11. V99

    V99 *****

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    I had the BCG vaccine in school in the UK, it's for tuberculosis. It usually leaves a coin sized scare on your arm for life, or mine did.
     
  12. akrasia

    akrasia Senior Member

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    That's quite plausible except there has to be something that has a strong propensity to awaken the sleeping dragon. Until we have the proper epidemiology, it's anyone's guess. When you listen to "survivors" of Incline Village something tore through that community in a particularly virulent way. Did they all have latent XMRV? There is much to learn.
     
  13. bullybeef

    bullybeef Senior Member

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    Oh...that vaccine....we are never given the technical term in the UK. Thanks V99
     
  14. Sunshine

    Sunshine Senior Member

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    Yes it's TB as V99 mentioned.

    MMR is not BCG.

    I'm yet to hear of people getting ME/CFS from MMR (interestingly) which is quite impressive as it's three infections at once in 1 shot in the arm (to save cost over single vaccines), which is a nightmare for someone immune supressed with XMRV (HGRV). Maybe these youngsters go onto develop Autism instead? Or.....XMRV (HGRV) was no longer injected into people years ago and it's only people in their late 20's+ with XMRV (HGRV) and MMR wasn't used then as it's quite new.

    I'd love to know the age of the youngest person with XMRV+ blood test who has neuro immune ME/CFS.

    All routes lead to the government. There was no need to cover this illness up when it costs them tens of billions $$ per year in lost tax revenue.........unless they (UK, USA) caused a worldwide pandemic and (literally) infected the western world realised their error and has to not speak a word. Hence the need to stay silent and not research what they knew existed anyway and 'nail' anyone who started showing real abnormalities in people with ME/CFS, such as ME/CFS friendly doctor Dr Sarah Myhill who was indeed nailed by the General Medical Council (GMC) for commiting the henious crime of using B12 injections in her ME/CFS patients.

    It'll all begin to make sense, and as previously mentioned will make a great tragic movie staring, 'US'.
     
  15. I would veto this suggestion. We already have The Disease of a Thousand Names. Now Dr Burrascano, a much-respected Lyme Doctor, wants to add yet another, total 1,001. We have a clumsy difficult-to-pronounce name for the virus, XMRV, that's bad enough as it is without adding further insult. What we DO have is a perfectly-respectable, easy-to-say, current, widely used (in all English-speaking countries outside the insular USA), technically accurate and well-known. The term is "M.E." - which just about everyone understands.
     
  16. Gemini

    Gemini Senior Member

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    AIDS was called GRID, gay-related immunodeficiency disease, until they realized others were affected

    how some disease names are chosen:

    http://en.wikipedia.org/wiki/List_of_eponymous_diseases

    Gemini
     
  17. LJS

    LJS Insert Witty Comment Here

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    What about CFSMEXMRVXANDHGRADHGRV?? sounds good to me, make it so.

    ... Say that ten times fast... ready.. go!
     
  18. Mark

    Mark Acting CEO

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    Well anyway it looks like the 1st International Conference on XMRV may well be the last...
     
  19. George

    George waitin' fer rabbits

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    Snicker, snort, ar, ar, ar, ar, ar, ar, snort. (grins)
     
  20. thegodofpleasure

    thegodofpleasure Player in a Greek Tragedy

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    That's unfortunate.
    I thought GRID (Gamma Retrovirus Immune Disease) would do just nicely before I read that.
    OOps !
     

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